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This post has been copied and some following posts moved from this thread: Possibility of ME or PVFS after COVID-19, Long Covid "Paul Garner: For 7 weeks I have been through a roller coaster of ill health, extreme emotions, and utter exhaustion May 5, 2020 Paul Garner, professor of...

The project description by Landmark shows how important a retraction of deeply flawed science papers is. I think the norwegian trial would have never been funded without the UK Lighning Process trial.

This post and some of the following posts have been moved from this thread: NICE delay publication till 9 dec 2020. Draft guideline consultation closing August.

This tweet does not specifically refer to LP but fits the topic well.

I wish that they would have to involve the ME Association. Recovery Norge is not a patient organisation but a businesses association.

This would make a long term follow up impossible.

They should wait till this important study is finished: Physical Activity Monitoring in ME/CFS https://www.s4me.info/threads/norway-haukeland-university-hospital-fluge-mella-seeking-me-patients-nearby-bergen-to-wear-fitbit-for-6-months.11565/#post-205704 and the Chalder Fatigue Scale should...

What a waste of money. :banghead: :grumpy: I hope they will at least use objective endpoints.

does the timeline sound to good to be true?

you could use sunglasses, if your are not light sensitive, there are bright sunglasses with very light tint

In Germany there were the same discussions and worries but it changed. "The Federal Government has so far left it at an urgent recommendation people should wear face masks on buses, trains and in shops. 10 federal states are now going further and making the mask compulsory, no compulsory in...

SMC and NHS are so fast with their BS. Young health care worker will probably be most of risk to develop post Corona Fatigue or ME/CFC because of exposure and age :( And nobody will take them serious if the lung and bloodwork look fairly ok.

This was today, does somebody know what was said? edit: by the way Jena, the town which is using masks, still without new cases, in the rurarl district nearby which startet with similiar number of cases, new cases still rising. edit 2 In Germany we speak with virologists about things like...

Thank you @PhysiosforME! :)

Boom & bust seems to be the lay term. For example all-or-nothing behavior is used in papers. All-or-nothing behavior sounds like - when I am not able to run a marathon then it's not worth to get up. ;) People with ME would never accidentally adopt this term for fluctuations between good and bad...

advice for post viral fatigue (not ME/CFS) without GET, it's more like - try activity step by step as your recovery progresses? I am not sure you need this advice (because that's how natural recovery intuitively works) but the notion to take it easy and rest seems helpful

Yes, we don't really have a well comparable place even in Thuringia. Erfurt and Weimar did not start with so many cases. The district Greiz had similar case numbers in the beginning but is a rural area. The town seat is most affected there (town 135 cases, 20.524 inhabitants, district 285 cases...

The graph with the purple bars shows new cases per day in Thuringia (the federal state where Jena is located) https://www.mdr.de/thueringen/corona-statistik-zahlen-grafiken-aktuell-100.html population of Thuringia 2,136,752 popukation of Jena 111,407

Version 2 https://www.oxfordhealth.nhs.uk/wp-content/uploads/2020/03/OH-011.20-Coronavirus-and-fatigue-v2.pdf Tom Kindlon found it and posted it on twitter