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Arguably, in one critical way, it has regressed with the general abandonment, or at least diminution and downgrading, of the concept and practice of convalescence. I shudder to think how many long-term ME/CFS patients would have been a whole lot better off, and on a sustained basis, if they had...

Yep, this is just part of a propaganda blitz of the formal literature, ostensibly from different individuals and groups to give the appearance of independence and consensus. See also the recent advice on exercise by the Royal College of GPs in Australia. Written by [drum roll] Paul Glasziou, he...

Key points: PEM is NOT "fatigue after exertion" Pacing is NOT typical quota-contingent (goal driven) approach How is it that these relative latecomers to the game can get it so easily and quickly, and express it so succinctly and clearly, yet so many of the supposedly world leading CFS experts...

Always said pem, as in pen, just swap the n for an m. Keeping it short and simple is what acronyms are for, I thought. I don't have the time or energy to spell it out every time, let alone say the full term.

We have achieved unity!

Yeah, why is it that when subjective and objective disagree, the subjective are preferred? Surely when there is a discrepancy between them the goal is to get them synced up?

The importance of... empathic... communication You can't teach empathy. According to the findings of this study, treatment options included in a portfolio for an integrated service, delivered by a multidisciplinary group of health care professionals and for patient’s choice: self-help...

I don't disagree with that. My point was more that the profession could actually be doing a lot more good for anxiety and depression in particular if they focussed less on 'fixing' the alleged psycho-behavioural (and 'moral'), um, deficiencies in the individual, and more on changing or at least...

Which I support. But social, political, and economic conditions also play a big part in those two conditions, I think. If you are looking for non-physiological factors affecting human health, then political/social repression and exploitation, physical violence, and poverty – which are (or...

Then wearables which she talked about briefly and very dismissively as unreliable and not validated for ME. Well then the profession needs get to making them reliable and validated. Because inadequately controlled PROMS are not okay.

This.

I would like to see both tracking, and saccade, properly assessed. Along with a bunch of other dynamic stuff, like focus, pupil dilation, blinking behaviour, lubrication/tear production & composition, etc. Including any difference between the eyes (i.e. lateralisation). All properly controlled...

The summary of her lecture to 42 listeners: Since the cause of ME/CFS is not clear and there is no causal pharmacological therapy, i.e. no medication, ME/CFS should be understood as a psychosomatic illness that can be treated with behavioral therapy. This would mean that the psyche plays an...

If the primary goal of therapy is to (genuinely and sustainably) increase patients' overall activity capacity, and it should be (even Wessely and Chalder think so*), then it must be measurable by objective means. That is simply not up for negotiation in my view. I have yet to see a good...

All the best to you and your mum, Ian. :hug:

And be subject to so much defamatory and dismissive abuse for it.

A number of factors, including the lack of a research effort that is scaled sufficiently to meet the public health problem, has led to understandable frustration in the ME/CFS community. Lack of research effort is not the only major reason why patients are frustrated. I understand the need to...

Or within known biases and confounders in this type of research (i.e. relying heavily on unblinded subjective outcomes).

"I suppose we could study individuals with FND who are not anxious or depressed... but they are hard to find." Exactly. Emotional distress is at the core of these disorders. Let's face that, and its implications, and help everybody else face that, too. Again with the arbitrary assigning of...

This.