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  1. Sphyrna

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Thank you. I suppose the terminology is even less specific than I thought, if it also includes ongoing symptomatic COVID-19. So, this definition can even include cases that eventually self-resolve and do not convert to any other Post-COVID-19 syndrome, muddying the waters even further. I don't...
  2. Sphyrna

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    I do not recognize most of these names, but it shouldn't surprise us to see Paul Garner and Flottorp, who I recall recently endorsing an RCT of the Lightning Process, on there. What a sham.
  3. Sphyrna

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Wow, thanks Nisreen, that really means a lot to me. So, Long COVID is an umbrella term encompassing organ damages and "ME-like" symptomology (among some other things, like PICS, I guess), and there is quite a lot of room for different combinations of the two. Now, unless someone shows that these...
  4. Sphyrna

    Letter in BMJ: Long COVID-19, persistent somatic symptoms and social stigmatisation, Ballering, Rosmalen et al, 2021

    I like how they're engaging in the usual tactics of rerouting discourse towards Cartesian dualism, relabelling patients with their own ill-begotten construct, and ascribing causality to self-blame (since the symptoms obviously would resolve if they sought help for them), but also framing it in...
  5. Sphyrna

    Gulf War Illness - causes

    Man, I was looking for extra information on how this topic is pertinent to GWS to prevent going off-topic, but there's just straight up nothing to be found but lawyers, who mostly stopped taking up lawsuits over Cipro due to futility. There's just absolutely no scientfic interest in this...
  6. Sphyrna

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Even if it were possible for this to happen sometimes, it'd still be a matter of sensitivity and specificity, which is why everyone here is so antsy for seeing the test run on a validation cohort. If like 1% of the signals picked up by the nanoneedle were false positives from mental illness...
  7. Sphyrna

    Gulf War Illness - causes

    Ciprofloxacin administration is explicitly one of the major risk factor for opportunistic C. difficile infection, so this does sound a little unnecessary to me? Unfortunately I haven't found a solution (if there are any, they're most likely going to be highly individualized, by merit of how FQ...
  8. Sphyrna

    A clinical primer for the expected and potential post-COVID-19 syndromes, Walitt and Bartrum, 2021

    One of the main complaints about the Long Covid construct I've seen was the lack of specificity with respect to underlying pathology, but I guess we've reached the point where this is resolved, not by exploring key biomedical differences, but by saying that in 2021, literally everyone can be a...
  9. Sphyrna

    Functional neurological disorder and multiple sclerosis: a systematic review of misdiagnosis and clinical overlap, Walzl, Stone et al, 2021

    https://sci-hub.st/10.1016/S0140-6736(05)63920-7 Is that the study by Poser that is referred to? I'd be hard pressed to even call that a study if we can't even look into the methodology used to diagnose CFS. He might've just replaced one misdiagnosis with another.
  10. Sphyrna

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The documentary is suprisingly watchable with automatically translated subtitles, btw, at least the first 5 minutes. So that's an option for anyone who's interested, although I doubt there is much in there that most people on here don't already know. Really not excited over the fact that I can...
  11. Sphyrna

    Gulf War Illness - causes

    I can certainly confirm that Cipro is more than sufficient to send you on a one-way-trip to CFS city. From another source, I read that the military handed out Cipro at a dosage 500mg b.i.d. for 40 days for Anthrax prophylaxis. I took the same dosage for half the duration, on two different...
  12. Sphyrna

    Association between CFS and suicidality among survivors of Middle East respiratory syndrome over a 2-year follow-up period, 2021, Ahn

    Yeah, this isn't ME/CFS per se, but, I think we can agree with their conclusion that effective treatments to alleviate "this s" are needed. I could think of an effective way to resolve suicidality in ME sufferers, and here's a hint: It has more to do with resolving ME, rather than...
  13. Sphyrna

    Gulf War Illness - causes

    You'll be elated to know that our old friend Simon Wessely had already solved that particular mystery. https://www.spiked-online.com/2002/05/23/world-trade-centre-syndrome/
  14. Sphyrna

    Gulf War Illness - causes

    I have an airman friend who suffered GWS, and she wasn't even part of the Gulf War. It was from the anthrax vaccine, but the burning trash pits in Afghanistan, and working with JP8 fuel and hydrazine day in and out probably didn't do wonders for her health either. Wonder how many cases of...
  15. Sphyrna

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Stress is seen as the scapegoat for just about every ailment, while exercise is seen as the panacea. It's almost as if society has a pathologic need to delegate responsibility for health to the level of the individual. Someone should write a spiritual sequel to "Denial of Death" called "Denial...
  16. Sphyrna

    My Doctor Told Me My Pain Was All in My Head. It Ended Up Saving Me. 2021 Medical examiner article

    https://onlinelibrary.wiley.com/doi/pdf/10.1002/ejp.1739 I'd recommend reading this commentary on the above trial. Chances are, you'll burst out laughing at one specific part, as I did. You'll know it once you start reading the second paragraph...
  17. Sphyrna

    My Doctor Told Me My Pain Was All in My Head. It Ended Up Saving Me. 2021 Medical examiner article

    https://pubmed.ncbi.nlm.nih.gov/33471404/ By the way, is there anyone here who would describe success in pain treatment as best quantified via improvements in self-compassion? I often see doctors state that patients don't want the pain to be gone, but rather that they just want the negative...
  18. Sphyrna

    Maximal handgrip strength can predict maximal physical performance in patients with chronic fatigue, 2020, Jammes et al

    A bit of a tangent, but I believe this might fit with some of my ME illness experiences. No invigorating effects from exercise, reduced resting and maximal heart rate in spite of deconditioning (secondary to ME), panic attacks with mild ME that dissipated as illness turned more severe...
  19. Sphyrna

    News from Germany

    Well, I hope this time they'll actually try to assess risk of bias with something akin to the GRADE system, unlike the phoned in RKI and DEGAM approach, which was more along the lines of "Checking if the paper is labelled as an RCT, disregarding how well "controlled" it really is, or a...
  20. Sphyrna

    What symptoms of ME that you personally experience is (a) not shown on your medical file and/or (b) not in the ME literature.

    a.) My ME is listed as "Tiredness syndrome of unclear aetiology", which is just about the closest you can get diagnosed with in Germany. ME is, for all intents and purposes, a nonentity over here. It does not do my severe insomnia, the fact that I am nearly fully bedridden, or my experience of...
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