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I have had sleep issues for a while before me/cfs, but they do feel very different of what I consider me/cfs related sleep issues. "Normal" sleep issues were mostly that I struggled to calm down after a busy day, and woke up sleep deprived which caused a clear pattern of sleeping very little ->...

I feel like it is possible that PEM that is actually fully seemingly out of nowhere (and for sure not triggered by emotional exertion or something similar), could be caused by something else like an unknown infection etc. I do think it is a rare occurance for someone to have PEM that isn't...

The whole article just doesn't make any sense to me. I can somewhat see how CBT can mean different things to different people, but by reacting like this the only thing they seem to try is to avoid taking any kind of responsibility & change. Just like the other reaction from the pediatricians...

https://www.vgct.nl/reactie-vgct-op-artikel-nos-over-behandeling-me-cvs/?fbclid=PAZXh0bgNhZW0CMTEAAaeazRaH9IqnUxkSCHUNUaQrg4fU7rR5VmAgM5_VKF_wJKFcRWAgCn4E2ht1wQ_aem_eOL0xe8TkMyCG67U3WrSiQ Reaction to the article in the NOS from the "Association for Behavioural and Cognitive Therapies"

It is quite cruel, I agree. Especially the younger you are the more difficult it is to stop a treatment and advocate for yourself against doctors that only dismiss your experience. I suspect it was a edited fukuda, that didn't mention PEM at all (the normal fukuda does at least include PEM...

Im young, and in my experience all doctors seem to think "cvs" is just chronic fatigue. As a result many are send to go GET/CBT. I think the current guidelines from GPs and pediatricians also considers CVS to be part of SOLK (somatic symptom disorder), and don't have any mention of PEM anywhere...