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I feel like a little increased inflammation belongs in the "it may get worse before it can get better" category, because I feel better long-term from a little immune stimulation... but anything that makes you crash isn't a wait-and-see. :thumbsdown: You did the right thing.

That's a good idea... my plate is really full but I will pass this idea on.

Why must u hurt yrself. But seriously -- one or two in USAWG did purchase it, including Mary Dimmock. She says that not all of it is terrible, but the management section is where it gets really bad. It acknowledges issues with PACE (!) but still recommends CBT as a good treatment. She calls...

It was not well-considered to begin with I guess. We've seen so much crappiness over the years that my knee-jerk response is really to be infuriated and tired like... we have to fight a lot of the same battles over and over again. I can only imagine how people feel who've been at this for...

Creepy. Well today Harvard joined the ranks of pseudoscience re: ME, but we'll see how long they stay that way. It really does read, though, like someone died in 1993 and rose from the dead in 2019 to write this, without any knowledge of the intervening time. That has to be a term: research...

Hey, everyone. I have word from a couple of sources that Ron Tompkins and WenZhong Xiao, both of Harvard, are on the case. [Edit: And I've introduced Mike to Wenzhong via email in case he wants 'in'... and just got a response. They totally do already know each other!]

Yes -- AHRQ.

I don't think that's grounds for complaint. There are numerous studies showing acupuncture helps with pain... we wouldn't get far arguing against things only because they're outside the mainstream. Waaait, I remember this. I could never access the full text... That one lists CFS as a...

I have always read stuff like this as meaning "scam cures for a disease that's a sham". The more they believe the illness is just 'people wanting attention' or 'focusing on widely-experienced sensations' or 'due to lots of overwork' the more ridiculous the proposed intervention. A scale, where...

What you're seeing is outrage, not surprise. Additionally, considering the scope of the work that must be done, private industry doesn't have the wherewithal or desire to pick up the slack. That's why advocacy matters: we have to continue fighting for the gains that we are making, and we have...

Apparently, Harvard just released a medical education module that is anything but. USAWG already has ahold of it and so does #MEAction but I haven't yet seen it mentioned here. The title is 'Understanding Chronic Fatigue Syndrome', but if that's something you're interested in you should likely...

Great band name...

I've tried Huperazine A for this reason -- no effect noted. Did it only for awhile and could really have had the wrong dosage, so YMMV.

Yup I'd avoid criticizing his work or ANYTHING else about him beyond his comments re: PACE -- even here.

Wow, do I ever wish more people got this. Expertise in a particular field also doesn't make one automatically correct, or we would be done with PACE here and now. :cautious:

The BPS crowd is definitively gearing up. We've seen maybe a 3x rise in pro-BPS articles and tweets over the past few weeks. I don't think that wave has crested, yet, but we'll see. I've seen this a number of times: the more sure someone is that all of their thinking is correct, the more...

Yeah. I'm personally aware and other people on #MEAction are, too. I feel the same about Chapman -- he seems to have been badly burned in some kind of advocacy snafu, but he omits details and it appears to have been before #MEAction's time. We have all been through so much with this disease...

Also open to other volunteers who'd like to read aloud or do back-issues of important articles! Adriane is managing this. I've been reading some of the science articles. :)

I passed on the info about PULSE, and I'll let @EspeMor answer on the rest. We're having a meeting soon to share info about how we did med ed in the US and how we can 'translate' that success to UK work. Thanks, @obeat!

Yeah, that's the metaphor I use as well. You can call all diseases the result of 'stress' -- but mysteriously we only treat chronic illness without a cure in this particular way. Bonus points for relapsing remitting, bonus points for an illness that affects more women than men, bonus points...