Search results

It seems from the abstract that they are blinkered by their theoretical model of exercise therapy intolerance caused by cardiovascular deconditioning, so the immediate effect of exercise on that model might be breathlessness and fatigue, which of course can be fixed with graded exercise...

The thing that has driven me mad with almost all the coverage including by government ministers is they keep talking about PIP as if it were income to live on for people not working, with part of the solution to get more people off it and into work. That is wrong. It's an allowance to help...

What a shambles. Last minute changes even while debating, no on knowing whether they were voting on the bill with or without the changes...

How much Personal Independence Payment (PIP) will I get? The amount of Personal Independence Payment (PIP) that you get depends on how many points you score in the PIP test for daily living and the PIP test for mobility. Daily living component If you have daily living needs, you may qualify...

Done.

I have no idea what point he's trying to make in that patronising pile of platitudes.

My understanding is that they say they only do the surgery if there are clinical signs/symptoms and scans indicating relevant structural problems, and the signs/symptoms are improved by traction. But there seems to be dispute over whether their measurements really indicate surgery is necessary...

Hmm, I think it is probably an attempt to warn against the hard sell from brain retraining sellers. But it includes the sort of reasoning that the BPS people use to justify their idea that once someone has reached stability they can safely add 10% more activity, that is pacing-up. And the idea...

MERUK link: https://www.meresearch.org.uk/forward-me-group-position-statement-re-spinal-surgery/?fbclid=IwAR1adrY5UppVfwslxNXq1QUV-tnzoTlQ727gqfxVLjuLr2Tu1yK_3GUE0b8 The statement...

There was a statement from ForwardME and its member associations warning against it. Someone will find the link. I'm too knackered.

Yes please. I'm sure members would be happy to contribute ideas, references and editing suggestions if you want them.

Please do. Would there be any chance of making your seminar on the Cochrane conspiracy into a published paper?

Thanks for clarifying. Yes, I agree, ME/CFS should be considered for research funding on a level with other chronic disabling diseases.

Having witnessed the terrible suffering in the final years of someone with Parkinson's disease, I am glad they are getting research funding - it should be more. They have treatments, but they only slow the disease, they are not cures.

Thank you, @MittEremltage for taking such a thorough approach to challenging BHC on their recommendation. It looks like all they are saying the brain retraining programs their patients have tried is a minor improvement reported by patients in symptoms that come under the dysautonomia umbrella...

It's possible some people from the MEA, AfME and other groups have been applying pressure. However, until we see what is in the plan, we won't know whether it's been worth the wait, that there is no promise of extra money for ME/CFS services. Given that the MEA won't even tell us what the...

You're right, @Hoopoe, except when you say 'becoming'. Psychosomatic has for more than 30 years been a way of denying we are ill and therefore denying us medical and financial support.

Does it matter? Isn't he best ignored? If we ask questions like this to try to get the details of his story straight, doesn't that imply it matters? Whether an individual had long covid for 6 months or a year before recovering doesn't make their fantasy about why the recovered a useful piece of...

UGH. I hope the Long Covid organisations rise up to fight this. It's dire. Citing the Cochrane fake update shows just how low these people are prepared to go.

I agree with straightforward reporting of the science. BPS and SMC will talk rubbish regardless, especially on media outlets that are in the SMC's pocket. If given a chance to reply to a BPS statement, there will be ways to point back at what the science actually shows and the irrelevance of BPS...