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Post copied from the New Zealand news thread. Radio NZ reporting tonight... https://www.rnz.co.nz/news/world/474423/top-scientists-join-forces-to-study-leading-theory-behind-long-covid It doesn't sound like they are looking at ME/CFS research or collaborating with??

Not sure if this has been posted... https://www.health.govt.nz/news-media/news-items/long-covid-be-tracked-help-new-coding

23 'COVID-19 and National Immunisation Programme research projects' have been funded by the "Ministry of Health to undertake research into the ongoing impacts of COVID-19 and future pandemic responses. The research projects will show how whānau, communities and the health system responded to the...

ANZMES statement post closing of the Petition to reclassify ME/CFS as a disability... https://anzmes.org.nz/reclassification-update/ This seems to [be] in response to the article shared in prior post above, that quoted MOH officials as saying the reclassification won't happen. and

6444 signatures on the ANZMES petition that closed 30th August. Article related to the ANZMES Petition to reclassify ME/CFS as a disability... https://www.stuff.co.nz/national/health/300673847/kiwis-with-chronic-fatigue-extremely-disappointed-officials-wont-reclassify-illness This quotes MOH...

LONG COVID CARE: I came across this article highlighting a care model in Hawkes Bay... http://www.ourhealthhb.nz/news-and-events/latest-news/support-for-long-covid-sufferers-in-hawkes-bay/ The article links to a guidance document that looks reasonable...

Leanne has prepared some content for her Youtube channel that might be useful for sharing with other young people adjusting to life with ME/CFS. I have watched half of one, and it seemed well-balanced and accurate. I wondered if anyone had time to review all the videos? Link to channel: ME...

A 'landing page' for them in provided by Auckland Uni. Click on info for patients. https://www.nihi.auckland.ac.nz/long-covid https://www.nihi.auckland.ac.nz/node/1221

Yes, I guess it has morphed into looking for both. :)

The Effects of Influenza Vaccination on Immune Function in Patients with Chronic Fatigue Syndrome /Myalgic Encephalomyelitis https://file.scirp.org/pdf/IJCM20120600017_29918208.pdf International Journal of Clinical Medicine, 2012, 3, 544-551 http://dx.doi.org/10.4236/ijcm.2012.36098 Team...

NZ context 2006 statement from IMAC on 'Chronic Fatigue Syndrome (CFS) and immunisation" "It was concluded that evidence linking CFS to HBV vaccination largely consists of data generated from publicity. " Ugh. https://www.immune.org.nz/sites/default/files/ConcernChronicFatigueImac2006V02Final.pdf

Enhanced Gene Expression Following Vaccination in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Ekua W. Brenu et al https://www.scirp.org/pdf/_2013032814255107.pdf International Journal of Clinical Medicine > Vol.4 No.3, March 2013 10.4236/ijcm.2013.43029

Just found this thread (had been searching for vaccination rather than immunisation). Which lists articles /letters to editors, anecdotal content not research papers. https://www.s4me.info/threads/medscape-covid-vaccines-linked-to-functional-neurological-disorders.22042/

Searching again for papers that explore whether vaccination may be a precipitating factor for ME/CFS, and or cause worsening. found: 'Precipitating factors for the chronic fatigue syndrome', Irving E Salit, 1997, Journal of Psychiatric Research. https://doi.org/10.1016/S0022-3956(96)00050-7...

Has anyone watched this yet? Useful to share?

Eleanor has published 3 education videos as 'An Introduction to Myalgic Encephalomyelitis / Chronic Fatigue Syndrome" Has anyone reviewed them? I am aware of Eleanor from her 2015 publication 'Assessment and Treatment of Patients with ME/CFS: Clinical Guidelines for Psychiatrists' which I...

Could NZ limit long Covid? – Expert Reaction https://www.sciencemediacentre.co.nz/2022/03/09/could-nz-limit-long-covid-expert-reaction/

Webinar on Orthostatic Intolerance for people with ME/CFS Dr Jenny Butler, Consultant Physician - General Medicine, at Christchurch Hospital. Hosted by MECFS Canterbury on 9th March 2022. "Many people with ME/CFS experience triggering or worsening of symptoms when moving to and/or maintaining...

From the Emerge Newsletter - March edition

ANZMES is "urgently seeking to ascertain demand for fractionated/micro (paediatric) doses of the Pfizer vaccine within the ME/CFS community. Please consider answering this short survey if you're interested in a lower dose of the vaccine + research participation." Survey...