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That could be because up until May last year, ANZMES had encephalopathy in their official name? I have emailed Health Navigator to suggest they change it.

The Rest Assured Respite Charitable Trust is advertising for two more Trustees. The Trust has a MEal programme, Mentor programme and Charity Boutique, and are working towards their long term goal of providing a place of respite for those with ME/CFS/FM. For more info...

Note from moderators: This post copied and another moved to a thread on this story here: https://www.s4me.info/threads/the-heart-breaking-experiences-of-mothers-with-me-nz-herald-feb-2020.13710/ New article in the NZ Herald from the Complex Chronic Illness Support team...

Note from moderators: First two posts copied/moved from thread here https://www.s4me.info/threads/news-from-new-zealand-and-the-pacific-islands.4230/page-18#post-235524 New article in the NZ Herald from the Complex Chronic Illness Support team...

Does anyone know where to find the 2014 IACFSME Primer? Most MECFS websites seem to expect this link will find it... https://www.iacfsme.org/portals/0/pdf/Primer_Post_2014_conference.pdf but that webpage can't be found. This page...

Hadn't heard about either the chair role or the group. Thanks! Definitely will be good to investigate.

I have just come across a related article in medium.com about the vagus nerve, which mentions a 2016 paper reviewing the research on the Vagus Nerve. I can't access the full paper and wondered if anyone had access to the full article? The article also has a link to American Headache Society...

This news item is interesting in that some ME researchers are using PET and MRI scanners. This new invention, a 3d colour xray, MARS scanner looks like it might replace those? Might be some years off...

Moderator note: This post copied from thread here https://www.s4me.info/threads/news-from-new-zealand-and-the-pacific-islands.4230/page-18#post-228308 This news item is interesting in that some ME researchers are using PET and MRI scanners. This new invention, a 3d colour xray, MARS scanner...

This is an opportunity to raise awareness of the issues in accessing education and support for students at NCEA level with ME and other disabilities. n.b. There are an estimated 3,000 young people with ME in NZ. Individuals can apply for a role on the "Disability & Learning Support NCEA...

damn.

I wonder if any review of documents that are intended for guiding doctors, needs to be read with an understanding of the language used and approaches within their professional community. Doctors don't have much time, they need shorthand to some degree? Perhaps 'complex patients' means...

This research article in the Journal of The Royal New Zealand College of General Practitioners has just been brought to my attention... http://www.publish.csiro.au/HC/fulltext/HC19041 A neuro-inflammatory model can explain the onset, symptoms and flare-ups of myalgic encephalomyelitis/chronic...

This research article in the Journal of The Royal New Zealand College of General Practitioners has just been brought to my attention... http://www.publish.csiro.au/HC/fulltext/HC19041 A neuro-inflammatory model can explain the onset, symptoms and flare-ups of myalgic encephalomyelitis/chronic...

@Caramel_Cat worth taking a look? Looks like there is a 4 week subscription trial for 1 pound.

New story on Stuff (and I think in the printed The Press today). https://www.stuff.co.nz/national/health/117957344/christchurch-chronic-fatigue-sufferer-told-it-was-all-in-her-head Good article and video. We led this with...

MECFS Canterbury (https://mecfscanterbury.nz/#/) can FINALLY announce that the new CDHB (Canterbury District Health Board) HealthPathway for ME/CFS is live - as of Friday, 29th November 2019! We have been working with the CDHB team over the last year on getting the content improved, so are...

Any preference @Hutan if we approach this as a MECFS Canterbury activity, or perhaps as a M.E. Awareness NZ activity /with a national spin?

This looks new - a case study for working with me/cfs patients from University of Auckland, Goodfellow unit... written by Dr Vicki Mount, General Practitioner, MBChB, DipPaeds, with expert review by Dr Rosamund Vallings https://www.goodfellowunit.org/node/468444 thoughts? review comments? A new...

Split from the New Zealand thread This looks new - a case study for working with me/cfs patients from University of Auckland, Goodfellow unit... written by Dr Vicki Mount, General Practitioner, MBChB, DipPaeds, with expert review by Dr Rosamund Vallings...