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Problem is that people with ME aren't considered CEV. My GP (not actually my GP, the head of the practice) refused to add me to that list at beginning of pandemic when I asked so I could get online shopping from supermarkets. Fact that we may be housebound or bedbound counts for nothing with...

I just had my 30th Sickiversary. I'm in UK. My GP did test me for viruses way back then in 1992. Took blood, and then I had to go back 2 weeks (or it might have been 3 - can't remember) for second lot of blood. Nothing showed up, but I've no idea what viruses might have been tested for back...

They look lovely, but I can't wear anything that sits below the waist because a back condition makes it painful. So I have to wear Granny Knickers that pull up waist high. So far the only ones I've found are at Big Bloomers. These are not ideal, I'd prefer they weren't shorts, but the rest of...

My Motabilty lease was extended by 2 years (low mileage) until 29 November 2022. We were wondering whether to go for an electric car, so OH had a bit of a poke around their website, but it seems there isn't a lot of choice there yet, plus I'm worried about charging when out and about in Wales...

Oh, Les Simpson was a lovely man. He came to speak to the Merseyside ME group years ago. Then later I had quite a long correspondence with him, but dead computer meant it all got lost, and also I lost his email addy. From what I recall there was a specific way of collecting blood for his test...

I'm sure last time I donated it asked if you wanted to pay the extra (the money the University gets for handling the money side of things) and it added it on automatically. Sorry if I've not explained very well! Anyway, this time that didn't happen. I was too brain fogged to work the percentage...

Chills was how my initiating virus started. I was so cold and shivering I had to get into bed with a hot water bottle and go to sleep. Still cold when woke up. No sore throat or cough or snuffles or anything else, just chills. I think I slept more or less all the time for three days. Then...

I remember IMEGA-e list too. Barton shut it down without warning in a fit of pique. Sadly I've forgotten what it was over now! I met up with somebody from the Other Sussex Group while demonstrating outside Dept of Health on Int ME Day years ago (when we still did that!). I'm sorry, but I can't...

I did my back in shortly after buying that IKEA chair, and have never been able to sit in it since... I think we chucked the cushion off it because our old much loved cat left fur and general filth all over it. And the woody bit we're trying to work out what we can use it for in the garden in...

I live in Liverpool, I know where that is. Anyone who knows Liverpool will know (or be able to find easily I think) where that is. I'm in Wales currently, theoretically on holiday... Though given the wet, windy, cold, horrid weather might be tempted to go home to Liverpool! Sorry, off topic!

Bit silly to film some of it in his back garden? (or it might be his friend's back garden? In which case it was them who were silly) ETA just after 4 minutes.

The place I went to for 1st shot was a mess. Two way traffic on a ramp about a metre wide (if that!) and I was in a wheelchair with OH pushing. Other probs too. OH contacted our GP practice via their website after, and got a very nice phone call back from them thanking him for feedback, and...

Thanks for this @MeSci. Kim Johnson is our MP, so if I can find the energy I'll write to her to at least thank her for her efforts on our behalf. Might let her know about the post code lottery aspect of getting into Group 6 as well.

I used to get problems under the button on the top of jeans. I used to sew some cotton across the bit on the back of the button. It did help somewhat. Once the EU made it illegal (?) for nickel to be in clothing products my life just got a whole lot better! Still need to cover the back of...

So sorry to hear your daughter has so many digestive problems. This will probably sound trite, but when I was pregnant and had morning sickness I found ginger was helpful. I used to have a ginger biscuit with my first cuppa tea in the morning, and while it wasn't completely helpful every day...

I'm pretty certain I'm allergic to nickel too. The same as others over earrings, but can manage with gold. Not found a watch I could wear for about 40 years. Worst thing was I bought a wonderful Mexican silver and turquoise necklace, which I paid far too much for on eBay :rolleyes:. I wore it...

We got on the Tesco list since OH has been shopping there (it's our nearest supermarket) for over 40 years, though we only have proof since he got a card from them, dunno when. Deffo over 20 years ago. Waitrose refused to take us on, despite my many years shopping at John Lewis. I'd asked my GP...

I've found the #LongCovid people on Twitter have been very glad of help from the ME/CFS community and acknowledge that. I try and keep an eye on some of them and stay in touch. I'm very glad that some of them seem to be making improvement over time, some after 8 months. Mainly I try to remind...

So this one looks like a re-write for publication of the first half of her thesis? I haven't got time to read tonight. (Come to that I don't think I'll bother as it's kind of like word salad, it appears to be in English, but doesn't make sense) It seemed to be what the BPS lot did a lot of -...

Oh God, yet another rubbish psych paper from Liverpool! :oops: I didn't have any problems from any of my lecturers at Liverpool John Moore's Uni, why should Liverpool Uni be so different? Is it because it's one of the Russell Group?