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@Hip , yes indeed it would be interesting with a trial for validation of the available Lyme tests as visible spirochetes are indisputable. I assume we could expect that the Sapi group thought of that as well, and that will be their next step.

Interesting information to be highlighted. My bolding. Looking forward to more biological results from ongoing studies to come. ClinicalTrials.gov Identifier: NCT03562325 Recruitment Status : Completed First Posted : June 19, 2018 Last Update Posted : June 19, 2018 Sponsor: Rikard Wicksell...

I hope there are people on Twitter who can comment on that Danish recommendation that is even dangerous to ME-patients.

It looks like a must-read for ME-patients with altered microbiomes and dysbiosis. @Andy , shouldn´t Lombardi be mentioned first in the title, like Lombardi et. al?

I read that thread too, but that was about quite another product that contains peptides from salmon protein a.o. I think it is too early to dismiss that one. If the effects that the inventor claims are true, it might well help other PWME. It might be snake oil, but actually we don´t know...

I´m a bit confused as the supplement that first was discussed in the thread on PR is a supplement called Peptide+ or in English https://pepticin.com/. It is available as a pill. Maybe someone can sort this out.

You surely know, but others maybe not, that Dr. Eva Sapi got a Lyme infection and realized that diagnostics and treatment were so bad, so she changed her career into this research. She seems devoted to it, and I´m grateful she is. Sapi and her group also found that Stevia ( yes, the herbal...

I think fecal transplants in ME/CFS needs its own thread for facts and discussions. Here are tweets by Emma Joy from the conference IIME13 in London yesterday. Thank you, Emma, for all your work. Emma Joy‏ @emmajoy6 Dr Johnsen: fecal microbiota transplantation in IBS. 1st RCT published in...

Thanks @Hutan. Were all tests of cortisol levels made in saliva? As that is the only valid and reliable method ( to avoid bias from being affected by differences in cortisol binding proteins that may differ due to genetics) I think it´s important. Even endocrinologists here has denied that...

Interesting. Here is the video from his talk at the Swedish RME conference in Stockholm, 2014

As professor Wessely is a psychiatrist he surely won´t find the cause of the Gulf Syndrome. I wished the Royal Society would listen to Dr. Garth Nicholson a.o. instead, but it is surely cheaper for the well-fare systeme not to. It would be interesting to read the list of references to his claim.

Does anyone have access to the full article?

I was particularly interested in their results as they used dark field microscopy that have been dismissed by many through the years. Here they clearly found spirochetes. "8 mL tubes of inoculated medium were filled to minimize the airspace present, thus providing a microaerobic environment...

" Healthcare (Basel). 2018 Apr 14;6(2). pii: E33. doi: 10.3390/healthcare6020033. Persistent Borrelia Infection in Patients with Ongoing Symptoms of Lyme Disease. Middelveen MJ1, Sapi E2, Burke J3, Filush KR4, Franco A5, Fesler MC6, Stricker RB7. .... CONCLUSIONS: Using multiple corroborative...

Interesting with a vaccine, but I think everyone should know that a bull-eye type mark is not at all present in all cases. It has been discussed if a reaction like that is less common in PWME. IF there is a mark, it may also look quite different than a typical bulls eye. I´d recommend you, who...

I´m very interested in Prof. Tate´s research. Is there a way for you to share parts of the article that you mention above? Unfortunately I couldn´t read the added page in your other thread as the letters were too blurred when I enlarged the text. Maybe I missed a trick to make it better. BTW...

Congratulations to you, our Norwegian friends! I really hope that ME will get the same positive attention in Norway from now on, as it has got in Sweden since December last year. The day when "the man on the street" knows a bit about ME and PWME´s needs, I think we can say we have had a...

For what it is worth, Rich van Konynenburg mentioned in his talk 2011 that the COMT polymorphism had been studied and found being more frequent in PWME than in healthy people, and the COMT gene, or it´s enzyme, regulates dopamine.

Today the newspaper Aftonbladet also published an article by Prof. Anders Rosén who got into ME research after he was retired. He says that researchers are getting closer to a solution of the ME mystery according to the reports that he gets...

It's a question I've asked myself many times when I've read what some doctors have actively done that hurts PWME.