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Congratulations every body. The incomes relied upon cannot be taken so soon. People cannot be pushed and shovelled into places they do not want to go, not for the price of a loaf of bread. The terror has abated. If not for all of you just being, for centuries, impossible to ignore, then I too...

@Tilly ?? 5B. Research misbehaved so ban research/clinic/practice plans to modify ME/"CFS" thought & behaviour Hallo Tilly, sorry I was delayed, exactly that, still with the foot in the door in case of the flat no ( @Sean ), so I tried some ways to fit in your vote design, and came up with: <...

legal disputes are not good for the health (though it can be done for one, as can casework and advocacy). I want to find another way. Wonko said: ↑ er,...so it seems possible that all of them (DWP, NHS, etc.) may pursue us, in an attempt to force us back into the workforce regardless of any ill...

these are medico-legal lawyers, same for DWP and SS legal teams, they will have no trouble understanding the evidence of the research that does not substantiate the rehab claims made so which are the shoddy papers most typical of each type of shoddy research error, each type of shoddy error to...

@Maat knows more about the NHS Patient Strategy that is supported by this GIRFT Litigation Team - which team aims to reduce the current and future grievous and also lethal harms and damages done - to keep the bill down This Litigation Team issued the advisory to treat complaints seriously and...

It is very sad that the Getting It Right First Time was the model for the previous Transformation Program now replaced by the current one, and as models go it was a very good model, like the Altogether Better models from 15yrs ago This centrally ordained GIRFT model was professed by local...

whoops, i cross-posted not having read the last 2 messages but in reply to :

Nightsong said: ↑ Some good ideas but frankly the last thing we need is the UK equivalent of a "Cohen Center for Recovery from Complex Chronic Illness". And I really don't like the concept of IACCs/IACCIs, which seems to be a concept out of the US which is ill thought through. Solve ME...

Funny how a population was bred up out of mass destitution then lifted out of yesteryears' mass destitution where landlords do rent-collection and eviction with knuckle-dusters on, and a debtor rotted in prison while their family rotted at the gate of the poor-house, so for ever after even in a...

Its shaved down even further: The divvy-up is a part of £3,5000,000. Is the other part to retrain the office stafff as in the other NHS enhancement rollout? So who gets the other part? Which part is which? Lets see the evidenced evidential (2024) Pathway for musculoskeletal diagnosis and...

Oh dear I was told that a virus is a piece of DNA without a cell and so I had assumed that any cell-free DNA is a virus These scientists in 2024 knew that exercise triggers some intense inflammation but they didn't know how, and still don't They also knew in 2024 that exercise also triggers...

This sounds like the people who get lumbered with a chronic covid aftermath are those who succumb to less of the virus overwhelming them in the first place and also take longer to get rid of these smaller numbers of virus, also taking longer to normalise levels of their cascading...

same with any relatively safe (modern) pharmaceutical medicine I was offered in the standardardised response to a known problem - within a year or so the harms got discovered, also it often happned that trying out some heavly advertised food or drink packaged or bottled by a factory coincided...

The nervous system with a dose of mission creep, famously taking the physical body unto itself into its very own etherical phantasmagoric spirituocorporalist essence, keeping body and soul together, entirely independent from the physical world which is misbehaving again as are all the people

This reminds me how very much it matters to stay within the parameters of comfort not to overtax my brain. Although my muscle stamina is still shot, and the faculties provided by my brain still flicker, I can more or less assimilate external signals for as long as I don't tax my brain. This I...

IF assuming the symptom was a sign of some deficiency or unmet need then is it possible that a supplementary top-up can put some recycling system back in order so no more of the nutrient is lost so no more symptom of some lack? Or might there be other reasons for the sufficiency eg some extra...

I should know. I was the h'ors doeuvre. Didn't go down well. Spat out and survived

. I think the Advertising Standards authority might take a look at advertisements by The Network seeking Members and Pathways posing the false claim that CFS is ME just to obtain money's by deception so its a fraudulent advertisement falsifed to claim also the profile, and statistics, and...

. The history I leant from the Long Covid SOS thread, has a timeline, starting last year in April with the encouraging top-down NHS directive to run a pilot with the British Society of Physiotherapy and Rehab Medicine (BSPRM) under contract, I suppose to see how many out-of work patients it...

It looks very much like these niche services are not so popular as they claim to be, and never will be. But also, whatever the national ambitions being courted by some elitist mavericks, the mainstream isnt happy with the national rollout of talking therapy and rehab programs, either. How could...