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  1. bicentennial

    2025-2026 Norwegian chronic fatigue guidelines - draft published

    Although its only at the draft stage, it was ready to publish. So this dissent seems to have bided its time, then signalled its dissent only at the last minute, in a cliff-hanger, when all else failed - or to exert more leverage. I doubt it just happened. Whichever side of the divide dissented...
  2. bicentennial

    Article: Deadly bat-borne virus with no cure spreading in India with 'epidemic potential' as new cases emerge (Nipah virus)

    On the WHO website, I cannot find any reference to this Nipah outbreak. The WHO indicates that India's public information is good, so we do not need WHO's authoritative, independent info. It was last year that the WHO saw a need to improve on India's public information So our news of the...
  3. bicentennial

    Article: Deadly bat-borne virus with no cure spreading in India with 'epidemic potential' as new cases emerge (Nipah virus)

    Today's news: Airports across Asia reintroduce Covid-style health checks after outbreak of deadly Nipah virus in India Thailand Ramps Up Airport Health Screening As Deadly Nipah Virus Outbreak Sparks Panic Across India India Rushes to Contain New Virus Outbreak I had heard India was still...
  4. bicentennial

    News from the USA, United States of America

    ... yes it dates you back to the 60s and for latecomers back to the 70s. So the current Health Secretary can relate but does he like lists? I heard that Frailty is a subject latterly experienced, conferrred on in depth, and studied by Dr Charles Shepherd, Medical Advisor to the Myalgic...
  5. bicentennial

    News from the USA, United States of America

    ... Frailty in the USA: collecting Medicaid resources and commentary ME Action petitions R. Kennedy (Junior) 2,077 Signatures Collected. Only 1,123 more until our goal of 3,200 Join #MEAction’s Freakin’ Frail campaign Sign This Petition First Name Last Name * Email * Zip / Postcode...
  6. bicentennial

    United Kingdom: ME Association news

    I have not myself assessed the original Suffolk service plan in question - my assessment is of its provenance, and its potential as a prototype for locally co-produced adjustment eg in Norway and Australia. It is not the property of marketeers marketing their highly regulated, importable...
  7. bicentennial

    United Kingdom: ME Association news

    Ahaha, just as i was thinking that - possibly - the prospecting trading partners eg Tyson, Elaros, and our MEA made their trade proposal to Suffolk NEE, but are not at all aware of the current ICB criteria and procedures, since they probably don't attend to the 2 hour Board Meetings on local...
  8. bicentennial

    United Kingdom: ME Association news

    I doubt the MEA has obtained for anyone the contracts it is seeking, however it tries to sound like it got the deal Our ME/CFS Guideline strictly qualifies who has the skilled self-discipline to guide primary care on its implementation of our Guideline. This is also a prioritised Recommendation...
  9. bicentennial

    United Kingdom: ME Association news

    Happily, our Recommendations do conclusively resolve all such anomalous discord. NICE did insist on this, with supreme confidence, because it is true. Unhappily, due to the over-emphatic discord, Dr Shepherd had lost confidence. He publicly announced that the world "cannot cope" with the...
  10. bicentennial

    United Kingdom: ME Association news

    Plainly a GP in primary care cannot provide for our ongoing specialist service functions as defined by our Recommendations. Nor can a digital app provide this "hands-on" service. There is no better education than to study the original wording of these Recommendations, with their Glossary...
  11. bicentennial

    United Kingdom: ME Association news

    Flickering fingertips heh Page 18 of 19 Next steps 1. Enhance outcomes and quality of life for both patients and caregivers 2. Decrease long-term NHS expenditures through early intervention and preventive care. 3. Align regional services with guidelines from the National Institute for...
  12. bicentennial

    United Kingdom: ME Association news

    I think we also need proposal of pro-active medical clinics, prepared and formatted in a network to collate research and audit data on their medical operations. Obviously, for the last 20 years, the "specialist" clinics were not cost-effective, unable to show a success rate, and their accounts...
  13. bicentennial

    United Kingdom: ME Association news

    One such thread is here, where Nightsong insisted "And we need a new national charity" as in: ============ "We are not going to make any progress until there is a national charity dedicated to a completely different model of care, because the signals that the NHS and the medical establishment...
  14. bicentennial

    Germany's "National Decade Against Post-Infectious Diseases"

    Did this bubble discuss what they want trialled by who, and do they have an informed choice in the matter, or are they totally reliant on their favorite experts else strangers to spend the money on their behalf, if so it makes them desperadoes but at least they accept there is nothing much worth...
  15. bicentennial

    United Kingdom: ME Association news

    or implausible deniability - either way the ambiguity is tactical
  16. bicentennial

    WHO: WHO launches new, unified plan for countries to manage coronaviruses: COVID-19 and beyond

    So as globally assessed: - the Covid-19 pandemic is past the peak, but severe disease and death continue in high risk groups - everyone else infected manages better, but also 6% of those infected develop Long Covid, and nearly 1% of those infected do not recover from Long Covid within a year...
  17. bicentennial

    Physicians’ experiences of assessing and supporting fatigued patients in primary care: a focus group study, 2025, Samuelsson

    It is odd that these people so urgently want it all standardised their way, but when presented with an industry standard they want divergence their way. Even though the only divergence allowed for is based on a doctor's own experience, and only on a case-by-case basis. That is my...
  18. bicentennial

    Hypotheses and Research Directions for ME/CFS

    Metabolic conversion (cellular) A dietician might need to know that an inefficient "metabolism" does not always mean weight-gain fails - it can be insufficient "cellular metabolism" without preventing weight-gain. If so, then this might increase the feed required for the 2 basic conversions -...
  19. bicentennial

    Hypotheses and Research Directions for ME/CFS

    The neurological and neuro-degenerative conditions Never mind the so-called “medically unexplained gut-brain axis" implying a primary stress response and even mystifying Coroners. What about the bile still being researched as an effective medicine because it regulates its own production, when...
  20. bicentennial

    Cortisol levels in ME/CFS

    Would that disappoint those 1st responders who only want the stress-response option with a multiple choice MUS question to pass their easy-read neuro-rehab exam for re-enablement of crippled sufferers with medically unexplained, endearing but enduring and persistent symptoms of dysregulating...
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