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Very good article, and short enough that GP's etc my just read it.

Quite and the COI of the PI's too.

Another thing which this paper clearly shows to the outside world is how all the changes were in one direction, to ensure CBT/GET had positive results ie these changes weren't random, weren't due to someone making errors in methodology or statistics, no, this was orchestrated.

Excellent, clearly written, concise and damning! Sincere thanks to all the authors for all your work and effort. Now all we need is for the Lancet and powers that be to actually look at all the evidence, do their job and take action to halt the use (abuse) of CBT/GET as treatments for ME/CFS...

Thanks Inara, that sounds fascinating, can't wait to see it when they get the sub-titles.

Nature published an article on January 3rd, "A reboot for chronic fatigue syndrome research " https://www.nature.com/articles/d41586-017-08965-0 Nature has now published a response to this from Professor Michael Sharpe, Professor Trudie Chalder & Dr Jon Stone, titled "Don't reject evidence...

Esther, the whole letter is now available at the end of the article "Response from the National Patient Safety Agency to Complaint about the PACE Trial", just scroll down to below the article and you'll see it: http://www.margaretwilliams.me/2010/NRES-response.pdf

https://www.omf.ngo/2018/02/02/pineapple-fund/ PINEAPPLE FUND INCREASES DONATION TO $5 MILLION Posted on:February 2, 2018 Two weeks ago, on January 14, 2018, OMF received a $1 million donation from the Pineapple Fund to “accelerate much-needed research for ME/CFS and related chronic complex...

I'll ask and see if it would be possible to get access to the whole thing, might take a day or two to get back to you with an answer.

For interest, here is the complaint made by Professor Hooper to the head of the National Research Ethics Service regarding PACE and the second link covers their response: "On 1st March 2010 Professor Malcolm Hooper lodged a complaint with the Head of the National Research Ethics Service...

Quite so. If I may remind people of Margaret Williams et al historical catalogue of articles going back to 1994, but with a couple of earlier articles, one by Ramsay and another a transcript of a Behan lecture. There is a search box at the top of the catalogue which is very useful...

I forwarded it to DT a couple of days ago.

http://www.virology.ws/2018/01/30/trial-by-error-a-letter-to-archives-of-disease-in-childhood/ Trial By Error: A Letter to Archives of Disease in Childhood 30 JANUARY 2018 By David Tuller, DrPH

You mean bullshit?

Some historical info on the RC's CFS reports: http://www.margaretwilliams.me/2005/politically-modified-research_marshall-and-williams_25jun2005.pdf p1 It will be recalled by the ME community that after publication of the Joint Royal Colleges’ Report on CFS in 1996 of which Professor Simon...

And how many of the would have the time to spare to do this?

You'd need to be sure they had ME in the first place if they truly recovered with LP.

http://www.mdpi.com/2411-5150/2/1/2 Restricted Spatial Windows of Visibility in Myalgic Encephalomyelitis (ME) Nadia S. Ahmed, Irene Gottlob, Frank A. Proudlock and Claire V. Hutchinson * Department of Neuroscience, Psychology and Behaviour, College of Life Sciences, University of Leicester...

I think you're absolutely right, critical reviews of various systems and then safeguards are essential to stopping a repeat of the whole ME situation. But first the medical and research establishment would have to acknowledge there is something seriously wrong, something which they would find...

I quite understand your point Barry, but PWME will very soon find out if they look online that CBT/GET are not curative or even helpful so they'll find the truth quite quickly and better they do that than take part in a course of CBT/GET which may cause them appreciable harm, plus depress them...