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  1. Daisymay

    SMILE trial data to be released

    Excellent, thanks so very much JtJ for all your efforts, I'm sure it takes a lot out of you x
  2. Daisymay

    Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents (2019) Chalder et al.

    Keith Geraghty is correct: “…one sees clearly how bad such science is - you can’t propose (that) beliefs perpetuate CFS, then find they don’t, but ignore your main finding…..” How much longer will journals continue to publish the flawed BPS brigade research which advocates for a psychogenic...
  3. Daisymay

    Intimidation of PACE critics or critics of other Psychosocial research

    I love the journalists response to Wessely: "An interesting development then occurred: on 11th October 2003 Wessely wrote to a journalist who had published articles on ME/CFS, asking the journalists opinion about Dr Cooks article: This was published in The Scotsman on Monday. Do you think this...
  4. Daisymay

    Trial By Error: Professor Sharpe’s Retraction Requests

    Jonathan, do you mean this is actually in the pipeline or are you just hoping this will be so down the line?
  5. Daisymay

    Mestinon

    Thanks, that's really good to know, I'll pass it on to her.
  6. Daisymay

    Mestinon

    Good luck @andypants, I hope it helps. I'm glad the LDN is helping with pain. A dear ME friend has very severe neuro pain, allodynia, is it this sort of pain which the LDN is helping?
  7. Daisymay

    Gut Neuroinflammation Connection Revealed

    http://simmaronresearch.com/2019/01/gut-cure-neuroinflammation-m-s-mecfs-inquiry/ Gut Neuroinflammation Connection Revealed “There is something very critical about how the gut and brain are connected, and we’re starting to unravel the molecular threads behind that clinical observation. It’s a...
  8. Daisymay

    UK Parliamentary debate today - Thursday 24th January 2019

    Very important points, couldn't agree more!
  9. Daisymay

    UK Parliamentary debate today - Thursday 24th January 2019

    I'm afraid I've come away from listening to the debate very grateful indeed to Carol Monaghan and colleagues but feeling how extremely powerless and ineffectual MP's are to change anything, the status quo will continue. The Health Minsters round up of the situation was so predictable...
  10. Daisymay

    Public Why don't we have more UK whistleblowers? A possible answer.

    Yes that's right, see p 12 -16, and I believe the same tactic had been used by NICE for other cases which had gone to Judicial Review: http://www.margaretwilliams.me/2014/uk-governments-three-pronged-strategy-for-cfsme.pdf
  11. Daisymay

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    To use the argument it is simply a matter of opinion is appalling. If Cochrane wants to be taken seriously, they should be standing for the highest levels of scientific methodology. How independent were the methodologists and were they perhaps psychiatric/psychological methodologists for whom...
  12. Daisymay

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    https://www.kcl.ac.uk/ioppn/news/records/2018/december/clues-to-chronic-fatigue-syndrome-in-overactive-immune-response.aspx Clues to chronic fatigue syndrome in overactive immune response Posted on 17/12/2018
  13. Daisymay

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Headline: ME is real and your body is to blame: Chronic fatigue condition that has mystified scientists for decades is caused by an over-active immune system, study claims
  14. Daisymay

    Younger lab newsletter December 2018 - includes news that a paper has been accepted

    https://shoutout.wix.com/so/03MUOy7Lu?cid=2f9eb777-39e3-4817-86ea-c6ad7c673e12#/main New Paper Accepted We are pleased to announce that Dr. Joanne Lin and graduate student Christina Mueller have just received confirmation that thier manuscript, "Evidence of widespread metabolite abnormalities...
  15. Daisymay

    Dutch Minister of Care letter to Parliament re ME/CFS

    You need to click on the "download" button and the translated letter will come up. https://translate.google.com/translate?sl=nl&tl=en&u=https%3A%2F%2Fwww.tweedekamer.nl%2Fkamerstukken%2Fbrieven_regering%2Fdetail%3Fid%3D2018Z23443%26did%3D2018D59089 Letter from the Minister for Medical Care...
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