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Looking at the agenda online it does not look as if the draft minutes of the previous meeting are being made available in advance. I may be being over critical but an AGM agenda with only the minimum necessary items on it is often what you see when a committee is seeking to control the...

My understanding is that he reported having phone conversation with a presumed LP practitioner in Norway which he found particularly informative and which was helpful in developing his understanding of and recovery from Long Covid. So the suggestion is not that he undertook an LP course as such...

I have said before, but it is worth repeating, it is not research psychologists but largely medical doctors who promote so much of this BPS psychobabble. People who dabble. Even psychiatrists don’t seem to get even a basic training in experimental design and psychological research methodology...

How many people will vomit because they saw a hospital yesterday, or blush over something they have already forgotten about or develop tachycardia in the middle of a work day because they watched a scary movie the night before? How many will develop tachycardia lasting a month or more because...

Presumably now members concerned about the inadequate notice for the AGM and about the Agenda could raise a point of order at the meeting, though I don’t know if the Chair is constitutionally obliged to recognise points of order or it is rather just a general social convention that such points...

Thank you @Dx Revision Watch and @Fainbrog for keeping us up dated on these issues.

On the basis of the Agenda, this is this case. The managing group (ie the Trustees) will probably have discussed the draft minutes of the previous AGM at their first meeting after the AGM and initiated what they regard as appropriate action, but the minutes will only be formally adopted by the...

In the earlier stages of my ME at a time when I was mild I did find an improvement when I was on holiday, though it was hard to say if this was just doing less in a relaxing environment with meals being provided rather than any actual change in my ME. Always any subjective sense of improvement...

It is hard to separate hypersensitivity issues from other things as mostly they do not occur without other things also happening. Reviewing in retrospect the 30 years of my ME I have a couple of possible examples: A rock band played on a flat bed truck with speakers point straight at my windows...

Does this mean the MEA ‘management’ think the matter is resolved or that they have agreed an official response strategy? Presumably still no news about the AGM.

We don’t know if the potential subgroups of people with ME never get any subsequent bugs or who get every bug going has any basis in reality rather just that ME has significant impact on people’s behaviour and thus their exposure to bugs. Some people have suggest the former have an over active...

I suspect the behaviour of the BPS advocates seeing psychological/psychogenic explanations everywhere is closer to simple Classical Conditioning than the PEM experience of people with ME or Long Covid. Have these people ever communicated with people experiencing PEM? Do they have any...

I find it relatively easy to rest when I experience extreme symptoms; I can lie motionless for hours at a time when I have a migraine and nausea such that trying to do anything is likely to result in collapsing or vomiting, however doing nothing when there are few or no symptoms as part of...

I have for a while intended to rejoin the MEA as my membership lapsed some years ago simply because I did not have enough energy to renew, back in the days of posting cheques. More recently I was debating whether or not this was an organisation I wished to support, though I did wonder if being...

On their Facebook page I did recently notice several comments of praise for Charles Shepherd that seemed more fulsome than the post might warrant and wondered if they were by people aware of the current controversy that sought to defend him personally. Understandably for many Charles is the MEA...

This could reflect a problem of a small number of people in control for a long period, when it becomes ‘THEIR’ organisation and any criticism is seen either as a personal attack or reflecting the critics’ personal failings. Undoubtedly the MEA has done a tremendous amount of good and a...

If this reply is by the Magazine’s editor it repeats the Chair’s failure to understand what is going wrong, reinforcing the concern that the issues with the MEA are systemic. It hints at a potential contempt for people with ME echoing their failure to address our concerns about Sarah Tyson’s...

I very much agree, we desperately need some basic but reliable descriptive data.

Thank you @Dx Revision Watch, you are much more thorough than I was.

I have just looked through the MEA Facebook page for the last couple of weeks and it all feels very surreal when contrasted with discussion elsewhere. It is not helped by their Christmas hamper project where people are asked to nominate others as ME heroes (not sure how the MEA phrase it). This...