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Mine has been two years. Year 1 - mild but at the time I thought it was awful, now I wish I could do that much still. Year 2 - Mostly moderate, long periods of moderate and a few brief periods of mild (for a week or two now and then). I am still hoping it will somehow end up being something...

This is true of my experience. When I was mild and still working it was very clear what my triggers were even with delayed responses. Currently moderate and it feels like a mix. I have triggers like before but also others I can't always figure out.

My watch has this monitoring one that is for stress. At first I thought it was some ridiculously useless setting as it endlessly congratulates me on restful periods. But I have learned to ignore that bit and realized it shows me what causes me exertion to an extent. I think this is based on...

It's always going to matter what the health issues or disabilities are and how obstacles that can be overcome are dealt with... they never seem to be that detailed.

I wrote to my MP who then wrote on my behalf to Stephen Timms MP. Here is the reply, edited to remove my personal info. Also it removed the formatting so is a bit annoying ________________________ Dear Alison, [my MP] Thank you for your email of 8 May on behalf of [me and my info]...

Makes me want to try stairs backwards for a day.

I am only 2 years in but this seems true for me too

I've recently moved from beta blockers to ivabradine. They have a worthwhile effect but don't get rid of the problem entirely. Fir me they lessen the effect a lot which means I can get out of bed and not rest for hours after everything. But, I still struggle to leave the house for max an hour.

What do you mean by unaccustomed muscle strain? Is this how PEM is triggered now or how it has always been even in the beginning? Mine is exertion period be it regular or unaccustomed. I don't really know if one or the other is worse as I haven't thought about it or observed. I feel like I...

Responding to a deleted post about symptoms telling you to stop. That's a good description. I get a feeling too in my body telling me to stop. I can't come up with an accurate description but I feel like from my shoulders downward I feel like there is pressure pushing me downward. And for...

I find arm movements an odd thing too. I can stand and cook a stir fry or whatnot that involves arm movements like chopping stuff, stirring, reaching... and my heart rate becomes the same as though I had walked up stairs. I find that baffling as cooking is physically easier technically.

I have zero evidence and far far less knowledge than many people on this forum. I don't think I even have the brain energy to read most articles on the forum... ...but, my mind wants to always tell me cfs is somehow how having too much or too little of some bodily thing that doctors don't test...

Do most people with me/cfs have heart rate issues affecting PEM from onset? I can only think of myself. I had my me/cfs symptoms and PEM about a year before getting ill with a sinus infection (later diagnosed as dysautonomia) and having autonomic symptoms since. Since, movement causes...

I don't have POTS but have a different form of dysautonomia that the doctor won't further classify. I asked why he hasn't diagnosed it as inappropriate sinus tachycardia and he said he doesn't diagnose that as the goal posts for it's criteria keep changing and no one agrees what it is...

During my first year of being ill I was still working but had zero left after work and ended up with many crashes of various lengths. I have my suspicions that this contributed to me getting worse. I really want to exercise

I have strong feelings about it and don't want to read about it right now. But, I was reading on the issue the other week, here in the UK, and while they are talking about assisted dying... palliative care in one of many things that is slated to have less funding which really needs more...

That makes me think more about my response. I also have adhd and caffeine used to make me feel energetic and calmer at the same time. I remember in high school biology class we did a caffeine experiment and my teacher was gobsmacked that my heart rate went significantly down while everyone...

I'm the opposite. I used to be someone that drank caffeine regularly. When I fell ill I had some caffeine and just like that if made me feel nauseous and gave me a terrible crash (which I had never ever had from caffeine before). I gave it up completely after trying it once more.

I have hypothyroidism which is very well known which has an array of treatment options. But yet every GP I have seen has little or no understanding of how you can still be ill if your TSH is anywhere in range. The nhs rarely tests the actual cruciall hormones of t4 and t3 and nevermind getting...

My husband means to be supportive of my health issues, but, I don't let him come into appointments because he won't read research and believes the GP knows what they are talking about. It would make it harder for me if he was always saying "the doctor said to try" or "the doctor says you need...