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Btw (related to my post #568 above), I don't believe this has been posted here, but apparently Avindra Nath spoke (by video) on a Finnish BPS long covid symposium alongside Sharpe and Garner (source Twitter Nina Steinkops and ME-media, finnish ME media account - I haven't found a website yet)

I don't agree: not only do I not understand how they came to say that they "demonstrated" that "a brain abnormality makes it harder for those with ME/CFS to exert themselves physically or mentally.", but I find the fact that these comments are not the info you get from the paper problematic...

Thank you for making a good summary. I'd like to highlight this: The test was designed for anhedonia, to "test the relationship between anhedonia and putative reward 'wanting' in humans". Walitt et al indeed seemed to have failed to check that the test did not exhaust subjects who were chosen...

I know right?

Indeed. I consider the material written from the bps ideology scientific disablism: it makes prejudiced harmful views seem acceptable and science-supported. Medicine has a history of wrapping maliciously prejudiced views and patriarchal/conservative preferences in science-speak (and psychiatry...

Indeed. Using EEfRT as saying something significant about non-depressed ME patients seems bull to me (it was never meant to do that), and what Walitt et al did with it is IMO reprehensible, but if we go along with it for a minute: how did they ensure that the result was not the effect of...

I understand the EEfRT should be set up to avoid such limitations, as it is meant to measure purely motivation in MDD patients, but I was wondering how they would have done so in Walit et al.. (In Treadway et al participants would also play four practise trials before starting to play the game)

Again, the EEfRT focusses on anhedonia in people with major depression. And for that it uses "the proportion of hard task choices" as a metric. The original study found that "the proportion of hard-task choices correlated inversely with Chapman Anhedonia score" and the Beck Depression Indext...

a) Twitter user Zedsrigil (Sunsweptforest) wrote a good thread on the use of the EEfRT, making clear how ridiculous it is. Twitter. Thread Reader App: Thread by @sunsweptforest on Thread Reader App – Thread Reader App b) I'm sorry if I'm repeating comments, but physical disability is not...

Skimming through the first part of the protocol, it looks like they did not manage to explain their intentions well in their abstract introduction. It now reads like a completely useless vanity study, like you can exchange "internet use" for pyjamas and say that because ME patients wear them...

I'm guessing Wild Type, the original Sars-CoV-2 strain.

Also, the effects of rape are intense and life-altering, particularly in the period just after. (It calms down after that, although triggers can conjure it up again.) Your whole being is shattered to pieces the size of a grain of sand, and you have to carefully tweezer them back into place...

By the way, there's a special place in hell for those using the term "sensitization" with regard to rape victims.

This bps movement is constantly looking for ways to justify and promote their ideology and the presence of it in health care. Like others mentioned here, being a victim of sexual assault is -unfortunately- super common for women. (And is also common among children.) Being groped happened all...

Pure evil. Patients become victims of their perpetrators twice: first when it happened, and then when it's weaponized against then to dismiss their physical illness, framing it as somatization. (For the record, PTSD can come with periods of overwhelming exhaustion, but that's completely...

ME Centraal just posted a participant report on the Long Covid symposium that was held on 19 October in Amsterdam. GT translate version (translation not great):A Feast of Recognition (mecentraal-wordpress-com.translate.goog) Original: Een Feest van Herkenning (wordpress.com) I think this...

(This hostility towards medicine is the basic stance of the bps movement btw. I come across it regularly when looking at old documents relating to the bps movement.)

That reminds me of the Oslo group thing https://www.s4me.info/threads/chronic-fatigue-syndromes-real-illnesses-that-people-can-recover-from-2023-the-oslo-chronic-fatigue-consortium.35388/ (which also included Vogt and Garner) where they say It reminds me of some groups with strong views who...

I believe Heart Rate Variation (HRV), you can find it in the app. (Can't look it up now, my phone is charging and I'm Stuck Under Cat.)

I also have a vivosmart4. (Currently not wearing it due to skin reaction with the band and I got a bump on my arm next to it.) It's a really nice device. It's far from perfect, e.g. it really struggles with tachycardia in combination with orthostatic hypotension. (So when in the shower it...