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Thanks for your enthusiastic approval. I want to emphasise that I do not mean it as a burn. I'm really gobsmacked by it.

(Sorry for the wall of text. I tried to make it shorter, but it became longer than I thought. Too brainfried to edit it shorter.)

I do not get the impression that this part of the study is an honest, illness- and patientinput-driven look into ME; to me it looks an awful lot like an effort to (further) establish the acceptance of a desired "effort preference"/effort avoidance framework of ME. More tool than find. Looking...

Copied from Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al I do not get the impression that this part of the study is an honest, illness- and patientinput-driven look into ME; to me it looks an awful lot like an effort to (further)...

Indeed, "calm down dear, it's only a commercial" when someone just ran into your car. Note the choice of the word "anxiety" instead of "concern", it categorizes criticism as emotionality fuelled by irrational fear, and thereby as something that can be dismissed. I think Nath and Koroshetz's...

Not so much "doing good" as "being right".

Indeed! (See also: Elon Musk.) When I saw Stockton Rush proudly show off his partially DIY built, one-button resurfacing, game controller-steered deep sea can, I was so strongly reminded of how some psychiatrist approach(ed) medical illness: simplistic, wrong and completely unsuitable, but...

I've seen several ways this is done in older material. It's not a fun read, so it's ok to skip it. In short the academic CBT pushers ignore it, fantasize CBT works in such cases as well, and fix the cognitive dissonance with patient blaming; in practise severe patients are at risk of being...

Exactly. A whole cloaking narrative was spun around it, but they basically want to treat ME like a fear of spiders: an irrational fear that leads to unnecessary (and disability-perpetuating) avoidance. And such things are treated with gradual exposure to the avoided thing accompanied by...

I'm also still disturbed that the term resembles a claim from a paper by Knoop & co that Walitt et al referenced (ref 35): They're saying the same linguistically, ME is defined by an alteration in behavioural choices on effort investment. The studies themselves are as far as I can tell quite...

Good letter @Dakota15 I'd also hesitate to go look for a more palatable replacement term. It gives worth to the notion that the phenomenon of not doing an activity because you can't/won't is an important "thing" that should be seriously studied behaviourally in ME/CFS as something that...

Always.

I'm not able to catch up to this thread yet, but a reaction to couple of things on this last page: Effort syndrome was classified in ICD's 7, 8 and 9 (and prob. also 6) in the psychiatry section, as a cardiovascular psychoneurosis, psychogenic heart & cardiovascular symptoms. Synonyms were...

Thanks! Glad you posted it, as it contained some info that aligned with a conclusion I drew from puzzling together info from other sources.:thumbup: I also made a PDF of a couple of sections to put into my archive.

@Sid quoted: Crawley was part of the Guideline Development Group of the now-defunct 2007 NICE guideline CG53.

Btw, that same letter also contains the snippet: (He then goes on about a hysterical origin of symptoms and abnormal motivation being the cause of fatigue, refuting the last with a paper by Andrew Lloyd.) This is remarkable because afaik the early stage research he refers to -that he claims...

I don't have the energytime to go through everything I have atm (docs from the 80s & early 90s), but I vaguely recalled remarks on benefits by Wessely in a letter, so I went looking. (If you plan to do some writing with this then I'll gladly spend some time looking through what I have if I can.)...

Using that painting as illustration is the cherry on the probable mud cake btw. :emoji_cherries: I've read a lot of old ME- and ilness -related psychiatry stuff in the last three years, and what I came across regularly is that these men presented and saw themselves as some sort of visionary...

This freedom-to-question rang a bell, so I went looking. And indeed, it reminded me of a bit from the opinion piece by the Oslo chronic fatigue consortium a while back, which was co-authored by Garner, as at the time thàt strongly reminded me of a common tactic by the far right, climate change...

It specifically says on the tin it is designed to monitor motivation (in anhedonia) without it being influenced by (depression-type) fatigue. The point is to observe anhedonia, "a decreased motivation for and sensitivity to rewarding experiences" in action, to see if the participants with...