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No- literally just said the lab they were done at and then ‘negative’ all the other tests had reference ranges.

Thank you very much for your response, i appreciate you taking the time. For me personally I no longer have just M.E type symptoms. I also have: diagnosed Mast cell activation syndrome, EDS H, possibly POTS, a mitral valve prolapse,double pelvic organ prolapse, fibrosis in my lung, chronic...

Interesting....have they given any possible explanation for this? Afrin suggests, in his book, that PWMCAS get all sorts of little anomalies like this. Wish i had your Drs and access to healthcare, Ginger. I am so very happy for you though and follow your progress with much joy. Yes, lab...

A couple of years ago a test, done at the University Hospital in Brussels, showed low level Anti nuclear antibody positive with a speckled pattern (1:80). When i asked my UK GP to repeat the test it came back negative. I thought nothing more of it as the result was a low titre. At the end of...

Ive spent time on Lupus, MS, thyroid and Lyme boards in an attempt to get to the bottom of my ilness and a lot of people with htose illnesses report something similar to PEM. In terms of M.E and autoimmunity - of course quite a few of us have positive ANA titres, which have been brushed off by...

Whoop whoop! If true - great news. I always thought there would be a third who might respond. Do please Jorgen Jelsted's Blog post about it. He talks about low response rates in Lupus studies, a disease known to involve B cells. It didnt turn out to be the hoped for treatment in Lupus at all...

@Squeezy - sorry im too unwell to reply right now, other than to say my expereince of his testing is good. some treatments are very cheap at clinic (IV abx etc), but he does not have enough time to spend with patients so care can be patchy. Ive met a lot of people at the clinic very happy with...

I will try!

This is a link to what she did http://www.meyou.no/this-is/

There are some treatments available for some PWMS, but a lot of people dont respond to treatment or arent candidates for it. I know a very severely ill woman with MS who has not responded to any treatment and has a primary progressive course.

This is a great idea, and much needed. I'm thinking of Fane Mensah and the great work he has been able to do as a PHD student and how grateful i am that younger people are getting involved. http://me-pedia.org/wiki/Fane_Mensah My son, who is currently only 17 is applying to uni for next year...

Its always interested me how many of us fit the MS subtypes, and have wondered if this is the only extent of our subtyping, with most people actually having the same illness (as opposed to the multi illness theory).

This fits my pattern too, although my remittings have occasioanlly been quite good, the general trend over 24 years has been of decline. Perhaps you could add the option of + also a long term remission? There are a number of us long timers around who have had long (for years) remissions to near...

I would hope that a large enough proportion of them would not. One of the Norwegian patients who had a complete recovery and went back to work as a Dr raised the money and the profile of Fluge and Mella's work. Without her getting better then giving back we might not be as far ahead as we are...

Wouldnt that be great - to have a whole army of well advocates with M.E?

Positive outcome from Rituximab/cyclo trials Said positive outcme to be printed on front pages of national newspapers Uk Rituximab study to begin Norwich centre of excellence to be up and running Ron Davis/OMF to have a big breakthrough For me personally - just to get through the next year...

Im just beginning the process of DLA to PIP - will be ringing them tomorrow for the first part. I already feel immensely stressed by it, plus as im so ill now it means i wont be able to do anything else for weeks now until the form is filled in. I will be filling in the form every day, a little...

If its Brazils especially, then maybe selenium is needed?