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So there is still almost zero awareness that this is an on/off switch, that it can settle in quickly but also resolve basically overnight in some people. In others it slowly improves but in most cases one day it just improves a lot and that's it. It's beyond clear that there is nothing to...

Oh, that's useful with the current nonsense over "loss of fitness" or losing the edge in exercise, how it completely misunderstands that it's about exertion and that it can be as low as simply sitting up once. Because in the mind of most physicians, "too vigorous activity" is what's at, some...

Ooof. When you know that "a good meeting" is basically: I wasn't gaslighted and it wasn't a complete waste of time. There are very few low bars that are lower than this low bar. This is the lowest of bars. So low it could power hurricanes.

On a lighter note, some art: Notice how GET is listed on the same level as all the nasty symptoms and loss, alongside gaslighting and the fantasy LC clinics. I don't think that even cancer patients would describe chemotherapy or their treatment at the hand of medical professionals alongside...

I'll be on the lookout if I see it in my twitter feed. I have to use the browser translate function on tweet threads so it's hard to search. The only thing I'm pretty sure of is that it was a discussion about this article or "activism" in general, you know, the bad kind. Normally I would be...

Ahem, "within an entire health system" is doing a lot of work, when it accounts for 10% of a subset of that population. I don't know why they call this a population survey when only 10% of a subset of that population gave data. This is sort of useful but it's far less comprehensive than some of...

So, taking a step back, this is an article about something that didn't happen. Which is impressive. Basically speculative journalism about things that could have happened but did not. And those are people who keep saying we don't have an open mind, but they close all discussion of their thing...

Over time it became painfully obvious to me that depression is far less well-defined than ME ever was, in part on account of us being lobbed into it, along with many, many other issues. And now basically depression is used a short-hand for illness, so basically everyone who is ill is now labeled...

This paper should be titled: two wrongs actually make a right, or something like that. Because the practice of diagnosing people with BS pseudoscience is even more wrong than people working a possible hypothesis when facing a dead-end. I will call BS on this based on personal experience. A few...

So the entire treatment/management section is just the yourcovidrecovery website that everyone thinks is a joke. Great. Awesome work from experts. Well worth all that money. The future of medicine is glorious: there's an app for that, it's totally useless, but there's an app for that, so shut...

So they made a spectacle of pretending to be threatened by... *checks notes*... people who can barely walk and collapse at slight exertion. What a bunch of clowns. We are a spectacle to these people, and they just keep lying and lying. To be fair, having patients protest mistreatment and...

I am very much looking forward for that attention and the effort that it implies, when it takes a different form than "we hope that the scraps of our work may trickle down to you but we will make zero effort at it, also did you know that unlike ME, LC is not just fatigue?".

Extremely annoying to see the endless loop of saying the same things while badly wanting to keep a separation:

The most significant thing about this tweet is the universal agreements in the replies. The failure is total, the kind that simply never happens with expert professions. Because whenever this kind of universal failure is a possibility, genuine experts adapt and move away from failure, they build...

Still nearly half at 2 year mark. This is a significant illness, has a huge impact on society when considering the number of people this affects. Of course the worst impacts are because of negligence and the complete lack of support, so this should be easy to address, technically speaking. But...

"They enter the clinic a sick child, and they leave the clinic no longer a child, because they're basically adults and by then they're just discharged" is one interesting strategy. A median of 2.5 years. WTF? Look at the median age of referral: That's about 2.5 years away from 18. Exactly...

Personally, I'm for the cat. The cat did nothing wrong and that's more than most can say. All hail the cat.

When memory retrieval and learning are affected, memory is affected. This is like having a car and no fuel. It's not accurate to say you can use the car since it would work if it had fuel. The concept of working here requires both a functioning car and the resources it needs to function. There...

WTH does substance abuse have to do with Long Covid? Those responses have nothing to do with the issue being discussed, this is agenda-pushing. This is where the whole "a functional overlay" is heading, this pseudoscience is creeping everywhere. It will ruin everything. Evidence is irrelevant...

Moralistic medicine is the worst medicine. The idea that people's behaviors are what's wrong is as good as recipe as it gets to accomplish nothing at all. This is the medical equivalent of "your carbon footprint" or the now standard public health approach of "you do you". We have to move away...