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    Closed UK: DecodeME updates, was recruitment thread.

    No problem at all. There are always new people come along anyway who may not be aware of my page.
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    Open Identifying the immunological signatures associated with post-acute COVID-19 syndrome [and ME/CFS], 2023, Iwasaki and Putrino

    Very useful information. I have now highlighted that on Twitter, Facebook, Tumblr, Bluesky, Mastodon, Instagram and Threads. (Did the Twitter post a bit earlier today and it is getting quite a lot of traction in different forms).
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    Closed UK: DecodeME updates, was recruitment thread.

    Initially I had just shared a DecodeME post with the comment. But the information about the 3900 kits could get removed if re-shared so have now posted it as a new post here: Or go to my Facebook page:
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    Closed UK: DecodeME updates, was recruitment thread.

    Useful to have that figure. I’ve just shared that on Twitter, Mastodon, Bluesky, Threads, Facebook and Instagram.
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    Closed UK: DecodeME updates, was recruitment thread.

    I've just shared this to a number of my social media channels: Attention: just 2 weeks left to return your spit kit. A few months ago there were thousands still out there. Because of the number of genes, the bigger the sample size the more informative the study so the more that are returned...
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    Trial Report Cost-Effectiveness of Online CBT for Children with CFS/ME Compared to Online Activity Management: FITNET-NHS Trial Findings, 2023, Crawley

    I suggested that in this post on Twitter/X 21k views and 22 hours later no one has corrected that view. ETA: I have just seen we sort of cross-posted as you had just seen that on Twitter/X.
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    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    Donated
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    Information leaflet on ME/CFS and children/young people either for patients or for doctors?

    Disappointingly we didn't get to use it in the end. I expected the information bundle to weigh 90 g but what came back from the printers weighed 106 g. They didn't seem to use the 80gsm paper for some of the order. So one page had to go to keep the weight at 100 g, the postage limit, and this...
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    Closed UK: DecodeME updates, was recruitment thread.

    MEActionMaryland did a few images of their own
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    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    Image I'm sharing around on social media
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    Closed UK: DecodeME updates, was recruitment thread.

    OK. Some subtlety can be lost in a social media post where there is a short character limit. I also want to motivate people to act and either sign up or encourage others to and not sit on their laurels.
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    Closed UK: DecodeME updates, was recruitment thread.

    Recruitment closes in 2 weeks today I'm using it as another excuse to plug the study on my social media accounts e.g.
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    Open (MA, USA) “Brain Scan Study [PET-MR] of ME/CFS, 2023, VanElzakker

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    Advocacy idea: Pay for ads to advertise medical research studies that are struggling to recruit.

    Peter and another person who wants to remain anonymous have now generously donated to boost the ad to more people in the Boston area (I had only paid for €35 worth of advertising). Incidentally none of us live in the US.
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    Advocacy idea: Pay for ads to advertise medical research studies that are struggling to recruit.

    Technical note: Facebook ads can only be around 30% text including comments by the advertiser included with the image. That's why I didn't promote the other, text-heavy image for this study.
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    Neuroinflammation in post-acute sequelae of COVID-19 (PASC) as assessed by [11C]PBR28 PET correlates with vascular disease measures, 2023, VanElzakker

    I've just paid for a Facebook ad to try to recruit a this study. See this thread here: https://www.s4me.info/threads/advocacy-idea-pay-for-ads-to-advertise-medical-research-studies-that-are-struggling-to-recruit.35898/
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    Open (MA, USA) “Brain Scan Study [PET-MR] of ME/CFS, 2023, VanElzakker

    I've just paid for a Facebook ad to try to recruit for this study. See this thread here: https://www.s4me.info/threads/advocacy-idea-pay-for-ads-to-advertise-medical-research-studies-that-are-struggling-to-recruit.35898/
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    Advocacy idea: Pay for ads to advertise medical research studies that are struggling to recruit.

    Somebody who had Facebook ad credits previously donated many to me for use for the ME/CFS cause. So have done this previously for other ME/CFS research studies, but I no longer have longer to those credits so this is the first time I've paid for an ad with my own money.
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    Advocacy idea: Pay for ads to advertise medical research studies that are struggling to recruit.

    Advocacy idea: Pay for ads to advertise medical research studies that are struggling to recruit. I've just done this for a 35km radius around Boston in Massachusetts on Facebook for Michael VanElzakker's interesting study Michael VanElzakker posted this on Oct 22 after a similar Covid study...
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    Closed UK: DecodeME updates, was recruitment thread.

    Recruitment closes in one month today I'm using it as another excuse to plug the study on my social media accounts e.g.
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