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Free: https://www.amjmed.com/article/S0002-9343(23)00460-6/fulltext A Cross-Sectional Study of Symptom Prevalence, Frequency, Severity, and Impact of Long-COVID in Scotland: Part I Marie Mclaughlin, Ph.D Luke Cerexhe, MSc Eilidh Macdonald, BSc Rachel Meach, Ph.D David Carless, Ph.D Nicholas...

"Haley Southwick recently completed a 330 hour training rotation at Bateman Horne Center for her doctorate of nursing program. She shares the highlights of her training experience in this": - 3-minute video - Guest blog https://batemanhornecenter.org/an-incredible-lifelong-impact/ "ME/CFS...

See pre-print here: https://www.s4me.info/threads/comparison-of-t-cell-receptor-diversity-of-people-with-myalgic-encephalomyelitis-versus-controls-2023-dibble-ponting-et-al.34314/

Pre-print Free fulltext: https://www.researchsquare.com/article/rs-3164397/v1 Comparison of T-cell Receptor Diversity of people with Myalgic Encephalomyelitis versus controls Joshua J Dibble1 Ben Ferneyhough2 Matthew Roddis2 Sam Millington2 Michael D Fischer2 Nick J Parkinson2 Chris P...

Invisibility and diagnosis stigma: disabling factors for female adults with myalgia encephalomyelitis (ME)/chronic fatigue syndrome (CFS) in a small-scale qualitative study in England Free fulltext: https://www.emerald.com/insight/content/doi/10.1108/IJOT-08-2022-0032/full/html Abstract...

Well done to @MEActNetUK trustees, Denise Spreag, Janet Sylvester & Malcolm Bailey, your e-letter, “The ME community support NICE and reject the misguided attack in ‘Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic...

As the second tweet says: “If accepted, our response will be published within 14 days, at which point we will share it publicly.”

Thanks to the World ME Alliance for coordinating a joint response which has been submitted now.

It’s good if the issue is highlighted. But like a lot of articles, it doesn’t explain the mechanism as to how having CBT and/or GET seen as safe and effective allows disability insurance companies turn down claims (saying patients need to try CBT and/or GET before they will pay) which then leads...

It links to this earlier piece I’ve just listened to: “Exhausting the exhausted – how employers & insurers cruelly add to the burden of Long Covid” (May 2023) by Sam Pearce Focuses on a man with Post Covid & Myalgic Encephalomyelitis. Insurers hope people will give up Audio version...

There is also this from the main PACE Trial paper in the Lancet

Some people might be interested in replying to Prof Michael Sharpe. See linked tweet. I'm blocked, so Prof Sharpe won't see my comments* but I can still reply to the thread by replying to Tim Glynn's tweet. *Though he might use a workaround like I have done given that he saw my initial tweet

Prestigious BMJ promotes ME/CFS misinformation 15th Jul 2023 Katie Johnstone The prestigious British Medical Journal (BMJ) has published an article which profoundly misrepresents the state of scientific knowledge on ME/CFS...

I've seen someone say in a private conversation that e-letters to the Journal of Neurology, Neurosurgery & Psychiatry should be kept under 600 words because this is a BMJ Journal. That's not correct. See for example the second last e-letter published...

Well done to Dr Shepherd of the ME Association for his e-letter on the BMJ website https://www.bmj.com/content/382/bmj.p1621/rapid-responses

I thought I would explain to this co-author the importance of the conflicts of interest.

"ME/CFS And Long COVID Education In Demand At GPCE Sydney 2023" https://www.emerge.org.au/news/me-cfs-and-long-covid-education-in-demand-at-gpce-sydney-2023/

Report on Parliamentary Friends For ME/CFS https://www.emerge.org.au/news/parliamentary-friends-for-me-cfs/

Thanks. Hopefully there will be a number of responses. I’ve shared the guidelines you highlighted on Twitter along with a link to the web archive.

There must be a press release somewhere. It would be interesting to see it.