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As we have just been highlighting on social media*, the Irish ME/CFS Association has decided to support this initiative also. *e.g.

My sister, Ali Deegan, who has design qualifications converted the paper into Word. This has enabled me a much clearer PDF (see attached) :)

"a gradual and controlled approach to increasing activity is crucial for rehabilitation". There is nothing controlled or gradual about how you are supposed to behave after LP. The 2 approaches are diametrically different, you basically can't support/suggest both! GET proponents claim that...

Thanks. It's on Windows. I don't have a Adobe licence. I was printing to PDF. I have now done as you suggested and simply saved as PDF (see attached) though there are still seems to be a loss of quality compared to the Word document. Thanks for the suggestion about a QR code: I had already...

The focus of their piece is long Covid. I think they would like to quote or ideally interview people with Long Covid. ETA: I have passed it on now (the link did occur to me earlier this afternoon but I had an excuse to write to her again just now).

In case of interest, I sent the journalist the following with regard to people with ME/CFS: People made worse with Lightning Process with working links: (i) MESci @mecfsscience Feb 19, 2016 Replying to @AnilvanderZee @AnilvanderZee @DrSpeedyandME The Lightning...

Given my earlier work on the reporting of harms https://www.researchgate.net/profile/Tom-Kindlon/research I was informed of an upcoming special issue of Trials on assessing harms in clinical trials, "The collection, analysis and reporting of adverse events in randomised controlled trials"...

This journalist has also now told me they would be interested in hearing of people with #LongCovid made worse by other programs that are somewhat similar e.g. Gupta. I talked to them for 20 minutes yesterday. An interesting & important project

Anyone know of any stories of people with #LongCovid who were made worse by the Lightning Process? A journalist is looking at this issue. I shared with them some stories of people with ME/CFS in this scenario.

I plugged the petition on my social media channels (Twitter, Mastodon, Instagram, Facebook & Tumblr) yesterday. Nothing particularly remarkable about that but a little curiosity is that somebody has just Blazed it on Tumblr (see image, I've hidden their username)...

Thanks. I will think about removing the “excellent”: there still is time. You may be right. I suppose including the extract implicitly means we are recommending it/think it’s good.

I've done lots of sharing of DecodeME to groups on Facebook. I thought I would try out a different tactic by tagging people and encouraging people to tag others. Unfortunately it hasn't really taken off in terms of tagging others. My post is here (currently with 15 shares) and another...

A version of this has now been published...

https://www.energysavingselfcare.com/ The cards are not free but she does post some examples on the associated social media pages e.g. https://www.facebook.com/energysavingselfcare/

My first cousin once removed, Lyra Chan, is raising money for the (UK) ME Association. Incidentally, I spent a lot of time with her mum (Rachael) and her siblings and family growing up. They were from outside Newbury in Berkshire (my uncle Brendan was a dentist in Newbury). I had a number of...

Good article in terms of explaining the importance of the study and the need for more samples: Ms Chowdhury added: “We hope to better understand the biological root causes of ME – that’s a starting point and not an end point. But the more data we have about the genetics, the easier it’s going...

I think you're the winner. I did get a number of suggestions elsewhere, mainly in reply to my Facebook post: But I think I will go it yours. I have wanted to send out the whole primer but that is very expensive. The only other option that would keep within our budget would be to do half or...

I went round Facebook and shared the deadline to dozens of groups today. Unfortunately you only reach a small percentage of members of groups with this method. Maybe 5% (?) which might reach 10% or more if posts get some likes and particularly if they get some comments. So feel free to do either...