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  1. wastwater

    Bilateral globus pallidus lesions and delayed progressive leukoencephalopathy in Covid-19...hypoxia...inflammation? 2022, Ballout et al

    Diffuse encephalopathy, however, does show up on SPECT, PET (with the proper software) and BEAM scans (electronic computer-driven EEG), but a physician has to have enough knowledge of the tests to order them...
  2. wastwater

    Bilateral globus pallidus lesions and delayed progressive leukoencephalopathy in Covid-19...hypoxia...inflammation? 2022, Ballout et al

    Does leukoencephalopathy always come with MRI changes I match with genetic leukoencephalopathy but no MRI findings like in most CFS or LC
  3. wastwater

    EDS, hypermobility, and the link, if any, to ME/CFS

    https://www.kireports.org/article/S2468-0249(24)01942-9/fulltext SGLT2-Inhibition in Patients With Alport syndrome If this can help stop the kidney leaking could it help the blood brain barrier as well Trial this as well as metformin in post viral conditions
  4. wastwater

    Exercise and vascular function in sedentary lifestyles in humans, 2023, Fasipe et al.

    Bardoxolone activates NRF2 but might of been stopped due to heart problems https://en.m.wikipedia.org/wiki/Bardoxolone_methyl
  5. wastwater

    EDS, hypermobility, and the link, if any, to ME/CFS

    Axenfeld rieger has some similarities with stickler syndrome. In stickler syndrome hyaluronic acid is mentioned,I may try the supplements in capsule form Alport syndrome kidney,ace inhibitors and (bardoxolone) Basement membrane in the brain maybe deteriorated with viruses I seem to have the...
  6. wastwater

    The biology of coronavirus COVID-19 - including research and treatments

    Covid-19: First coronavirus was described in The BMJ in 1965 The history of coronaviruses since 1931 https://www.bmj.com/content/369/bmj.m1547/rr-2 I also wondered if coronavirus have been modified for biological warfare if there maybe a mk1 and mk2 or just natural evolution What happens if...
  7. wastwater

    Complement dysregulation is a predictive and therapeutically amenable feature of long COVID, 2023, Morgan et al

    https://meassociation.org.uk/2023/12/medscape-new-tests-may-finally-diagnose-long-covid/ By Sara Novak Extracts Researchers at Cardiff University School of Medicine in Cardiff, Wales, United Kingdom, tracked 166 patients, 79 of whom had been diagnosed with long COVID and 87 who had not. All...
  8. wastwater

    Somerset NHS: Long term Health conditions (incl MUS)

    It should read with a specialist interest in wheelchair tipping and warping reality
  9. wastwater

    Genome-wide Association Study of Long COVID, 2023, Lammi et al.

    This shows a few interactions between FOXP genes https://molecular-cancer.biomedcentral.com/articles/10.1186/s12943-019-1110-3 There is a string of genes including PITX2 FOXC1 PAX6 and COL4A1 that all create the same eye condition and wondered is FOX also a collagen gene...
  10. wastwater

    Covid-19 vaccines and vaccinations

    I think I may of had covid at the beginning of 2020 (jan) but this is before it was official. It was flu like and reminded me of asthma a bit with the breathing,as this was before official covid I still had the wisdom to keep people away from me saying I had an unusual flu I never had the...
  11. wastwater

    Low dose IL2 in autoimmune and rheumatic diseases, 2023, Graßhoff et al

    https://www.frontiersin.org/articles/10.3389/fimmu.2021.648408/full Low-Dose IL-2 Therapy in Autoimmune and Rheumatic Diseases Hanna Graßhoff Sara Comdühr Luisa R. Monne Antje Müller Peter LamprechtGabriela Riemekasten Jens Y. Humrich* Department of Rheumatology and Clinical Immunology...
  12. wastwater

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    https://en.m.wikipedia.org/wiki/WASF3 Wiskott-Aldrich syndrome protein family member 3 is a protein that in humans is encoded by the WASF3 Gene Wiskott-Aldrich syndrome is the rare genetic disease that WASF3 is associated with...
  13. wastwater

    ME/CFS services in the United Kingdom

    Sentinel cfs in Plymouth what’s that like I’m not even really asking I can see what it’s like,wonderful Any better in Exeter
  14. wastwater

    Immunoglobulin A as a key immunological molecular signature of post-COVID-19 conditions, 2023, Graziele Fonseca de Sousa et al

    I suspect I may have an IGA deficiency as someone in my rare eye genes group mentioned this as being a cause for under reactive to bacteria In Younger years that’s grown out of and then over reactive after viral illness...
  15. wastwater

    Contesting the psychiatric framing of ME/CFS, 2017, Spandler and Allen

    A similar thing has happened with mental illness with the anti psychiatry movement and the mental illness is a myth including serious mental illness like schizophrenia and bipolar and I’ve never understood this or why there isn’t more on the topic...
  16. wastwater

    Genome-wide Association Study of Long COVID, 2023, Lammi et al.

    I’m familiar with FOXC1 as a developmental gene involving the eye
  17. wastwater

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    Yes thanks I have been through the process before it always seems somewhat random to me.
  18. wastwater

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    I just had a PIP review and had award removed and it triggered an ESA review and housing benefit on temporary,things just got messy quickly
  19. wastwater

    Could covid lead to a lifetime of autoimmune disease?

    I’m beginning to wonder if I may be able to escape into neuropsychiatric lupus
  20. wastwater

    Could covid lead to a lifetime of autoimmune disease?

    https://www.technologyreview.com/2021/04/23/1023438/long-term-covid-antibodies-autoantibodies-immunity-cytokines-lupus/ Could covid lead to a lifetime of autoimmune disease? Evidence is growing that in some people covid infections are producing autoantibodies targeting the body’s organs. If...
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