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I have a simple guide: anything that claims to cure everything cures nothing.

Just probably got myself barred from a FB page where people were offering a sufferer every pseudoscience cure this side of “thoughts and prayers”. I didn’t swear, but my god, the nonsense....

If I didn’t live in an upstairs flat I’d have one now

As the psychologist who is my assigned practitioner in this said to me, “we see a lot of vegetarians here”. Thanks, but I’m here because a flu nearly killed me.

I won’t go as far as to say they even mean well in all cases, even those have had, or claim to have had the illness. After all how can someone who is mild claim to have any real understanding of what it means to be severe? I had the recommendation of eating as much freshly prepared food as...

Can any of those who’ve been doing keto update their condition please?

Not a scientific observation, but I've just been listening to Myhill being interviewed by Gary Burgess and she talks in a hectoring tone, as if she was addressing a dog. The thrust of her approach seemed to be "it's diet, stop eating carbs and you'll be fine", which seems to me to highly...

And don’t waste YOUR energy in the other direction! Rest well friend, sounds like we need it

Trish, I’m feeling so rubbish atm I could have a unicorn’s horn on my head and I wouldn’t be able to present a point

Just saw that the MEA has a symptom diary available in the App Store for £12.99. Doesn’t feel right that the beneficiaries of a charity should be its principal benefactors. Maybe rename it ME Shop

I have to admit though that it’s largely my feeble grasp of the fluctuating nature of the condition, probably exacerbated by that “bugs bunny” attitude of so many

Even the MEAssociation website seems to me to have a very breezy approach to recovery, and a total lack of numbers. Far too much use of terms such as sone, few, and many.

Expressed pejoratively, and with my tongue in my cheek, pacing is the act of doing nothing during the times when you could realistically be doing something worthwhile. Which I am finding myself utterly incapable of doing. When I have a good day I actually feel more useless, pointless and...

Soon know. I’ll report whatever the result is.

Three weeks ago I started getting pain and stiffness in my left thumb and now it’s spreading and I’m going out of my mind with worry that it’s rheumatoid athritis. I’ve booked an appointment with the doc to get it investigated but I’m so worried about it. 47 years old, musician to the core. I’m...

Exactly. If my eyes hurt, can the NHS explain to me how a psychologist or GET is going to help me! Gah!

I do find darker screen styles help a little. Incidentally a nice act of charity the practitioner offered me at my assessment the other day was to ask immediately if I could stand having the light on in her room.

One of my constant symptoms is eye fatigue. I don’t see it mentioned often, but I’m guessing that’s just because it becomes part of the wallpaper for us. Has anyone found anything that alleviates it?

Oh god, like I need an excuse to eat MORE pizza

Funny seeing talk of activism. We’re by definition not all that active at all, never mind activist