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  1. TheBassist

    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    Thought you might like to share my joy: just got awarded zero points on my PIP application. The letter was filled with untruths and misrepresentations. The appeal will begin immediately.
  2. TheBassist

    UK: Sarah Myhill - 2015 Video: Chronic Disease - What's Really Going On

    If you want to really hammer yourself over the head with the car analogy give this a listen. I live Gary’s podcast btw, just this not this one https://podcasts.apple.com/gb/podcast/the-me-show/id1374903449?i=1000431004411
  3. TheBassist

    UK: Sarah Myhill - 2015 Video: Chronic Disease - What's Really Going On

    I see on her page the usual droning on about micronutrients and how every patient is unique and similar vague nonsense. Hopefully, this being a scientific page, someone can clarify this for me: if diet and lifestyle are not causal factors in ME, how can “treatment” focussed on them cure it...
  4. TheBassist

    UK: Sarah Myhill - 2015 Video: Chronic Disease - What's Really Going On

    I got kicked off that page for calling “bullshit”, as is my way
  5. TheBassist

    Ketogenic diet

    Let's say I'm curious but sceptical, as I am with most things
  6. TheBassist

    Ketogenic diet

    Is there any suggestion as to why keto would improve ME symptoms? On the severity scale where did you start, and where did the diet get you to? If I were to try it I’d need to expect very convincing results quite quickly, as I don’t have the energy to manage a complex menu, or to cram large...
  7. TheBassist

    Advice needed : how do you know when you’re okay to go out ?

    I have the same “window of opportunity” most days. First three hours: leave me alone, then three hours where something might be possible, then the end of the day fatigue sets in and it’s over
  8. TheBassist

    Advice needed : how do you know when you’re okay to go out ?

    Felt ok to go out today, and have wanted to for ages, so got on the bus and went to town. Was out for about 2.5 hours total. Not too much walking, visited a couple of shops, had a couple of long (and much needed) conversations, the first I’ve had in a long time, 3-4 months, talking about things...
  9. TheBassist

    PLOS bio: Time of day is associated with paradoxical reductions in global signal fluctuation and functional connectivity (2020) Orban et al.

    I’ve ling been interested in this. Age is a big factor too. We’re killing our teenagers potential with school times
  10. TheBassist

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    It’s just the pig headed notion that we’re just tired.
  11. TheBassist

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    For more on sleep, this is the book you want. Good audiobook too Why We Sleep: The New Science of Sleep and Dreams https://www.amazon.co.uk/dp/0141983760/ref=cm_sw_r_cp_tai_frstEbSWEWDJA
  12. TheBassist

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    Having attempted to read the booklet my first response is that there must surely be a way of offering the advice briefly and clearly. It surely doesn’t require so much explanation? I seriously doubt I could bring myself to read through all that in the hope of finding something useful.
  13. TheBassist

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    I’ve read the latest research on sleep, it’s not hard. There’s not a lot of it! But the conclusions are clear and they are if your body needs sleep, it’s telling you something that you gain nothing from ignoring it. I was not impressed when my “specialist” pursed her lips when I told her I was...
  14. TheBassist

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    Re: sleep I think the only advice they should be giving is to sleep exactly as much as your body will take. The body won’t sleep if it doesn’t need it. Never yet heard of someone sleeping themselves to death. Now the opposite, that is true
  15. TheBassist

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    [Bolding mine] 1 Really disliking the use of the word mental there. My preferred word is cognitive but maybe that's a personal hang up? 2 do most people find their limits slowly widen? Or is it just when people initially learn to pace themselves? Does anyone else find that there's a limit no...
  16. TheBassist

    UK Times:'What if the thing that’s making you physically ill is your mind?', Feb 2020, Rumbelow [includes ME]

    No way I’m going to read this thing, but the comments here are choice. Love watching bullshit getting trashed.
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