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  1. MeSci

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    I've emailed my MP to ask him to attend. He's LibDem Ben Maguire.
  2. MeSci

    Immune stimulation by vaccination e.g. Staphylococcus Toxoid Vaccine, BCG

    I don't think much of these: "Here are all the symptoms tested, with a star next to those that had significant improvement at 26 weeks. The number is the baseline score for the active group. *4.8 Fatiguability 4.8 Aches and pains *4.0 Reduced sleep 3.4 Muscular tension *2.9...
  3. MeSci

    Have you limited your activity more than you needed to?

    Same here; like the vast majority of people here, I always do at least as much as I can do without getting PEM, but overactivity always, or nearly always, produces PEM. Perhaps people who don't are suffering from depression?
  4. MeSci

    United Kingdom: News from #There for ME

    "With plenty of Christmas party food and mulled wine to fuel our discussions..." I remember enjoying these things too, even with ME, but now so many things are not suitable, including wine (can only manage one glass). Party food too has to be extremely limited.
  5. MeSci

    Could there be an on/off switch for ME/CFS and if there is, what would that tell us??

    Copied from https://www.s4me.info/threads/discriminatory-cytokine-profiles-predict-muscle-function-fatigue-and-cognitive-function-in-patients-with-me-cfs-mcardle-et-al-2020.16398/#post-281766 "Healthy cells with ME/CFS plasma behave like patient samples, while ME/CFS cells with healthy plasma...
  6. MeSci

    Hinxton scale development (new research outcome measure)

    Nancy Climax! Presumably they mean Nancy Klimas.
  7. MeSci

    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    I've just checked and my CRP was normal last year. (<1)
  8. MeSci

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    Yes - I've listened to it now and wasn't terribly impressed - it didn't sound very informative and was a bit too optimistic!
  9. MeSci

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    Merged thread 'Acceptance' of ME and COVID post-viral fatigue - radio programme I haven't listened to this yet - it's on BBC Radio 4: https://www.bbc.co.uk/sounds/play/m001n1p2 "Travel writer Lois Pryce was hit by a crippling post-viral fatigue after getting Covid in March 2020. She went...
  10. MeSci

    The Concept of ME/CFS, 2024, Edwards

    I feel worst from about 1100 to 1500, after which I start to 'recover'. It's largely driven by my gut, I think. When it's emptied (through defecation) I feel better.
  11. MeSci

    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    As I drink a small amount every day, I can't say whether I feel worse, the same or better the next day.
  12. MeSci

    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    I used to drink a lot, and carried on when I had ME, until I couldn't any more. I just have a small glass of wine each evening now. Can't drink beer any more because of gluten. I suppose I could buy gluten-free beer but I'm happy to stick to the (made from kit, so very cheap!) wine.
  13. MeSci

    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    I'd not heard of these, so looked it up - interesting.
  14. MeSci

    Crowdfunding for David Tuller starts October 1st 2024

    Nearly there! $66,409 raised, 99% of total; 546 Donors 1 day left; Project ends on October 31, at 11:59 PM PDT https://crowdfund.berkeley.edu/project/43450
  15. MeSci

    Poll: In pwME that report worsened sleep following exertion/excessive activity (or during PEM) what happens to your sleep during an acute infection?

    Like many pwME, I don't seem to get infections at all (for many years) except one possible COVID infection in 2020, so I can't answer.
  16. MeSci

    Crowdfunding for David Tuller starts October 1st 2024

    $59,669 raised, 89% of total, 517 Donors 1 day left Project ends on October 31, at 11:59 PM PDT https://crowdfund.berkeley.edu/project/43450
  17. MeSci

    Crowdfunding for David Tuller starts October 1st 2024

    $57,056 raised, 85% of total; 479 Donors 2 days remaining https://crowdfund.berkeley.edu/project/43450
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