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  1. MeSci

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    $59,880 donated. 92% of total needed (still 2 days to go) https://crowdfund.berkeley.edu/project/40018
  2. MeSci

    New Study: Gargling with Salt Water May Help Prevent Covid Hospitalization

    I couldn't find, from a quick search of the paper, whether or not patients swallowed the saline. This could be important if in COVID, as in ME, there is a tendency to hyponatraemia.
  3. MeSci

    Opinions on payments to participants in research

    I too voted "It depends" for the same reasons as others have given. I've just participated in a government-run at-home COVID study, which no longer pays, and expect to participate further, as I have lots of test kits they sent me when I agreed to. I was paid for my participation in earlier...
  4. MeSci

    New relapse of ME after 15 years

    Do you have enough salt, @Woozy?
  5. MeSci

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    $19,289, 29% of target 19 days left https://crowdfund.berkeley.edu/project/40018
  6. MeSci

    Bipolar disorder and ME/CFS

    Yes - that's what I meant, @Woozy, - sorry if it wasn't clear.
  7. MeSci

    Bipolar disorder and ME/CFS

    Maybe you've been misdiagnosed? It's very common!
  8. MeSci

    Closed UK: DecodeME updates, was recruitment thread.

    I've just noticed an error in the written report - it says "Females are more likely to experience...hyperthyroidism" whilst point 4 in the Initial Questionnaire Results above refers to hypothyroidism.
  9. MeSci

    Abnormal Glutamatergic and Serotonergic Connectivity in Visual Snow Syndrome and Migraine with Aura

    I'd never heard of Visual Snow Syndrome before. Once between the ages of 5 and 7 I experienced what I described as 'cotton wool' across my field of vision, and I was terrified and had to sleep in the bed of my aunt and uncle for the rest of the night. I am pretty sure I was OK in the morning...
  10. MeSci

    Closed UK: DecodeME updates, was recruitment thread.

    I hope the picture of a mouse/rat is not indicative that drugs will be tested on them. The results would be highly irrelevant to humans, especially as we know so little about ME, so there is no way to 'make' a representative animal to test drugs on.
  11. MeSci

    A Systematic Analysis of the Effectiveness of Mitochondrial-Based Therapies for the Management of (ME/CFS), 2023, Keferstein

    I haven't looked at it yet, but there seems to be a conflict between the title and the abstract. The title is 'A Systematic Analysis of the Effectiveness of Mitochondrial-Based Therapies', but the abstract doesn't mention mitochondria at all.
  12. MeSci

    Petition to UK govt: 'Protect the NHS and All Healthcare: Require #MasksInHealthcare'

    Hopefully the health service will provide suitable masks on entry. Some people may not have them.
  13. MeSci

    Petition to the ABC about Norman Swan's comments on ME/CFS and Long Covid

    I think I've signed it now by using Bing - Firefox kept showing the 'already signed' page. Is there any way to view the signatures of people who haven't left comments?
  14. MeSci

    Petition to the ABC about Norman Swan's comments on ME/CFS and Long Covid

    When I click I get this page: https://www.change.org/p/stop-the-abc-from-broadcasting-misinformation-about-me-cfs but it assumes that I have already signed and says "Take the next step". I've tried refreshing the page but it's still the same.
  15. MeSci

    Opinion Lessons from a Neurologist After 25 Years of Functional Neurological Disorder Subspeciality Practice 2023 Stone

    Jon Stone is the one with a seriously-weird website: https://neurosymptoms.org/en/
  16. MeSci

    Perceptible changes in muscle tension (moderate ME)

    I'm fairly sure that I've had a few occurrences of this, having become ill in 1995. I think that cannabis also brings it about temporarily. It definitely eases muscle tension. I've even been able to dance (as far as I'm skilfully able!). The early occurrence(s) lasted months, I think.
  17. MeSci

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    I believe it was Grenada in the West Indies where he went scuba diving, not Granada in Spain.
  18. MeSci

    IBS-like symptoms near -constant for about 3 months

    Thank you - hope you improve too. The idea of a colonoscopy rather terrifies me! I've just had a proper night's sleep for the first time in ages except when I take strongish sleeping medication promethazine. I wasn't woken by the need to pass large amounts of gas as I have been recently. I...
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