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Your completely right. But it is error prone. So like a standard analysis will reread the genome 15 times to squash out any errors. That would be called resolution 15.

Is it mentioned anywhere what resolution the WGS will be? Would it make sense to increase the resolution on HLA genes to 100 given the Zhang study findings and the fact HLA is notoriously error prone in sequencing. (Since it’s a relatively tiny part of the genome it wouldn’t cost that much to...

I never though I’d have a list with 10+ names in my head of researchers I wish every day would retire and spend more time with their grandchildren. (I know some of them are technically retired but I mean stop publishing things and speaking at every conference retire…) But here we are.

Oh sorry I had deleted my post because i realised i misread and thought that might have made my suggestion irrelevant.But if my suggestion is still relevant hopefully someone can test.

Totally understandable. It’s hard to resist throwing those low punches (metaphorically, not advocating violence) when you know these people have surely lead to countless preventable deaths.

Photos from the Millions Missing protest in Bern Switzerland (in front of parliament) today. Pictures taken by my Dad.

I wonder how self aware he is? But the tendency to capitalise words to add emphasis reads to me as unprofessional and earily reminds me of the social media posts of a specific US elected politician.

It makes me honestly wonder if some part of their longheld beliefs is straight up malicious and they know it.

Looking further. The Swiss study that found suicidality in pwME to be mostly caused by psychosomatic interpretations of the illness. Is quite seriously cited by Miller et al to support this sentence Urgh the audacity. And clearly they must have seen the suicidality part since it’s in the abstract…

Thanks your memory is clearer than mine!

Those numbers seem weird to me? Maybe the Finnish system works differently? Because in Switzerland most illnesses even biomedical ones have like 80-90% rejection rates. So the percentages seem off. (The Swiss government being particularly austere is also maybe the culprit — in the 2000s the far...

Ah ok. So retrospective. That’s less valuable data than I thought.

IIRC a large study looked for PEM in GWS and found that it wasn’t a feature. (Some people criticised the study, but there was a decent amount of discussion as well). No idea when this was, within the past year I think. (But my timescales are so off I can’t tell if something was a month or eight...

Are we gonna talk more about this? What was his data? What timeframe? What size sample? Anyone got info? In any case, this seems like a pretty sober response to that Miller et al piece.

This would be a good place to quote that Swiss study by Rea Tschopp which found that being told your illness was psychosomatic was the main reason behind suicidal thoughs in pwME. Ironically I think Garner, Miller et al actually cited that study in the original opinion piece (for different...

Pemgarda is a monoclonal antibody against certain COVID variants right? But it only works preventatively, you can’t take it after you’ve been exposed. (ie. it only works extracellularly not intracellularly). So I don’t really see why people think it would help Long COVID even if long COVID =...

Yep. The ones on Bluesky were mentioning stuff like “psychological harm”, “psychological torture” etc. But I don’t know what that actually translates to legally.

Looks cool Guessing this is BPS? Edit: Nevermind, definitely not BPS. Seems to be looking at muscles https://florey.edu.au/news/2025/01/finding-the-cause-for-energy-loss-in-chronic-fatigue-syndrome/

I hope we fight back against that headline as well… Edit: I tried to contact author via Signal and Bluesky. She’s written a couple good articles on ME/CFS for STAT so hopefully she will get it.

Cool to hear :)