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I always kind of saw the BPS/Mindfulness as Medicine admitting defeat and basically being like “We can’t solve this problem, so best we can do is brainwash you into thinking you don’t have a problem, or alternatively if that fails convince you that you can only solve the problem yourself and...

If you have thousands of data points and a very small group. It’s pretty likely you’ll find effects like that just through randomness.

The way I understand it, is in the age of the internet and quick answer they don’t. The overworked GP just looks up: “Cochrane CFS” Read the first sentences of the review. And boom they’ve made their decision. They’re not gonna look much further. Whenever they hear in the media they’re much...

With fitbit being bought by surveillance capitalism firm Google, and 23andME having sold everyone’s data after bankruptcy, the world you describe is looking scarily probable.

I skimmed much of the book’s thread and it looks far better than I was expecting. Thank you for the suggestion @Utsikt I will send it to my friend. :)

I have a friend who asked me what book to read to understand ME/CFS and “the situation”. They are not a medical professional or psychiatrist, they are just an average educated person who wants to “learn about” ME/CFS. I really have no clue what to send them. I’d preferably like something that...

Yes. More tatchycardia diziness etc

For me, completely the same, unseperable. They felt different when I was mild, but thinking back that’s only because physical activity would cause much worse PEM. Now that I’m very severe, and most my PEM is cognitive. There is absolutely no difference in presentation. (I don’t think there...

Here it is: https://www.bmj.com/content/389/bmj.r977/rr-8

Apparently it was dropped a year later… ‘Afflicted’ Subjects Drop Defamation Lawsuit Against Netflix; Alleged That Docuseries Painted Them As “Crazy Hypochondriacs” – Update https://deadline.com/2023/06/netflix-sued-affliction-documentary-defamation-fraud-1202664068/

I think there are genuine uses cases to group these illness together more in the sense of post covid post lyme and Post infectious me/CFS including other "syndromes" commonly triggered by infection. But why a new name, when "post-infectious syndromes" already exists (I think the buzzword...

Does the first C stand for “chronic” or “complex”? My view is that the conditions don’t have to be triggered by an infection. But have to have a documented linked onset to infections in a non-negligeable chunk of the population affected. Because otherwise I don’t see how you could say ME/CFS...

Ahh so the neoliberal “wellness culture” everything can be prevented by meditating and taking supplements philosophy

Yet, psychiatry, which they are promoting, is intimately linked to state power. So I think we should ask, freedom from what?

Had to make a low quality meme

Yeah I don’t think it’s impossible that interpol participated. As long as it’s some elite who upholds the system I wouldn’t be extremely suprised if interpol would take claims of death threats seriously.

I noticed this when looking at fields like “Philosophy of Medicine”. I was expecting it to be all critical of both systems of power in medicine and psychiatry. But what I found was that the dominant narrative is that everything is too “medicalised” and we need a more “holistic” (read...

@Robert 1973 Two German ME/CFS activists said on bluesky to me they have submitted a rapid response they wrote that focuses on the Swiss study (suicidal thoughts one)