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Propublica are an organisation in the US that focus quite heavily on data-driven / accountability-type journalism, and this project they’ve put out is really interesting. Essentially if the data is available they’ve pulled together lots of data on doctors in the US, things like prescribing...

Struggling to phrase this succinctly but...are you doing / what are you doing to educate clinicians about your important work and how they can possibly help? The main thing I’m thinking is that your research is really positive for the UK and for ME patients around the world, but it’d be a...

Mildly interesting: https://www.statnews.com/2019/05/01/ubiome-co-founders-are-placed-on-leave-amid-fbi-investigation-into-company/

I think it’s a good piece. Traditionally male traits seem completely opposed to serious illness, and we should continue to talk about this in the same way that the traditional idea of masculinity is at odds with things like clinical depression. He’s just speaking about his experience after all...

It’s fine I guess but apart from the second one at a push means nothing to anyone who isn’t an ME patient

Nope, never. I was very “healthy” while healthy, if that makes sense, so maybe my circulation was good too.

When I sit up with my feet lower than my heart, or stand without moving, blood slowly begins to pool in my feet which gradually turn red/purple. The same happens to a lesser extent in my hands. This is one of the physical signs I have that something is wrong, because obviously this would never...

Please just understand that if you aggressively and dogmatically push your own hypothesis, then you’re going to get pushback. I have plenty of ideas about what’s causative in CFS, but I can’t prove any of them, so I don’t say that they are correct. You’ve done a lot of research which is...

Thought it’d be a bad piece romanticising illness or something, which it does a little, but in the end just ends up saying absolutely nothing. “Is illness good if you’re a writer? Probably not.” Is basically the gist.

Ok :thumbup:

Sorry to be a bore, but it’s perplexing that you wouldn’t see any antisemitism in those articles. Holding all Jews responsible for the “cancer” that is Zionism? Numerous tweets about the Rothschilds? I should say for full disclosure that I am Jewish, and this kind of stuff has become scarily...

Yeah I mean he’s been accused of antisemitism and goes on Russia Today...not a great track record. It’s difficult isn’t it. I think if it was any other subject I’d distance myself from someone like that ASAP, but we don’t really have the pick of the bunch :/

:) Sorry, I’m just a bit fed up of it all at the moment

People are entitled to follow whoever they want on twitter, either temporarily or permanently. Not sure this really warrants analysis.

Crikey I’m really encouraged by those comments on Reddit. Such a surprise to see positive discussion and people understanding the bs.

Some good comments seem to be coming through if you sort by Newest, now. Apart from the one who thinks Dr Myhill solved it all 20 years ago :thumbsdown:

Over the past year or so, Graham Linehan seems to have taken it upon himself to fight the corner of being incredibly transphobic under the guise of being a male feminist. My personal view is that I’d just ignore him, as he tweets so much that this retweet will soon be old news anyway. If he ends...

Read the twitter mentions of any female journalist on any given day that they’ve posted a story and you’d find things 10 times worse. Oh well, good job it was a pretty bland and inconsequential article.

I’m not sure this is fair to say either. My local, King’s, is run by psychiatry. I was assessed for the service by a psychiatrist who gave me a diagnosis of “persistent physical symptoms” and medically unexplained symptoms. I have not seen a physician at any stage. A friend who was...

Had to skim read because of brain fog but does he actually specify which drugs he’s talking about? Asking because in the opening para he refers to them as “brain pellets”, or something, which I think is unhelpful because ssris and snris do genuinely help so many people, and stigmatising them in...