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That makes more sense - thanks.

They don't, nothing like that amount of money if properly processed lab tests. If just finger prick and dip stick tests then more like 50x cost price so they are adding a very large 'interpretation' fee. ETA: didn't spot mention of finger prick and dip-stick tests initially.

I see what you did there. :thumbup:

This is from the second one. Not my idea of recovery. "Regarding outcomes, 39.1% of patients recovered (defined as discharged due to recovery or increasing school attendance by >25% at 6 months)"

I have been using a Garmin Vivosmart since the end of November last year. I was looking at the long term data and was very pleased to see my high heart rate levels are steadily dropping. It's only about 2bpm per month which isn't a lot but I'm happy with the overall trend. Day to day it often...

I agree there is a lot of merit in this way forward. We constantly hear/read stories of inpatients having eyemasks/earplugs removed due to a lack of understanding; if there were evidence that these were beneficial(wwhich as patients we know they are) this practice could be stopped. I've often...

This felt like a major upgrade from the first programme. The initial one was more a questioning exercise to see if false accusations of FII are a problem, looking at both sides of the issue. This episode was very much saying that it is a problem that increasing numbers of people are concerned...

Yorkshire is getting a Spiked/LM Brexit Party candidate too. James Heartfield. I'm not posting this to be political, just to make people aware that his network is very much in the SMC's pocket.

Wow - this is breathtakingly bad. Useful evidence for medical negligence though.

I have been taking fludrocortisone for over a year. It has definitely helped me maintain my blood volume better, mainly at night. I used to wake regularly through the night feeling completely dehydrated and unwell and needed to drink >3l of water a day. I don't need to drink as much now and...

I don't know if my illness counts as the same thing with a 7 year remission in between that was virtually symptomless or I have had 2 separate episodes. I think it is a very important question.

Please thank your mother for telling her story. It is so heart-breaking and she has my eternal gratitude for her continued support of the ME community. No-one should have to go through what your family has. :heart:

I think it's from an AfME survey; that's what's mentioned in the parliamentary briefing document that all the charities put together. I'll put up a picture.

That is exactly how it reads. It is very thoughtful compared to theirs which reads as though they didn't put much effort in. Given that they are smearing our side as hysterics then a calm response is the only way. Thank you and everyone involved for your hard work.

He is 'annoyingly persistent' to paraphrase Sharpe and that's why he's one of our heroes. ETA: added 'one of' because we have many including you Jonathan.

Exactly. He 'worries' about Sharpe's 'harassment' but actually never mentions the treatments Sharpe advocates as recommendations. He confusingly says that there is evidence for pacing which I'm sure Sharpe would dispute! It's a completely on the fence piece which comes across as written by...

I think reacting to Rod Liddle is utterly pointless. He is a racist, misogynist provocateur and the people who read his garbage are not going to want to hear the other side of the argument. Although he has written a slightly new angle on this, apparently we have the power to sway WHO and NIH...

George Monbiot is very well aware of the dark side of the SMC but it's hard to explain our situation to strangers without sounding like a conspiracy theorist.

I wrote an email complaint about the last awful Reuters article Kate Kelland wrote, (the Cochrane one), citing that it betrayed their own Trust Principles and received no acknowledgement whatsoever. https://www.thomsonreuters.com/en/about-us/trust-principles.html

As I understand it the New York Post is a tabloid style paper, but I may be wrong.