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Thank you for all that @bobbler

Adults Coercing children to keep secrets is a massive Safeguarding Red Flag. The Smile Trial should have failed Ethical Approval for that reason alone. But the Research Ethics Committee were not informed about the nuts and bolts of Lightning Process .... because .... it's a Secret.

(BTW Lightning Process was Esther Rantzen's daughter's Second 'Cure' from ME) Daily Mail 2007 https://www.dailymail.co.uk/health/article-434248/Saved-living-death.html 'Saved from a living death' by Esther Rantzen 'For 14 years, Esther Rantzen's daughter Emily had her life destroyed by ME...

'Frankly Russell, the withholding of this showcase from the person who delivered the approved business case to the ICB Clinical Executive, is both disrespectful and reputationally, potentially damaging.' Who does he think he is? .

They have to tell themselves they are recovered/well, as part of 'positive self talk'. And reports from people who've done Lightning (and blow the whistle) say that they are told by Lightning Trainers that if they don't say they are recovered then Lightning won't work. That is why you cannot...

That really IS an excellent article! Thanks for posting it.

BACME appear to be a law unto themselves. Who is BACME accountable to? Who has BACME ever been accountable to?

Thanks to Shnickelfritz on twitter/X for screenshots of the Pulse article. This section of the Pulse article appears to announce that the DecodeME results confirms the 'Central sensitization' ideology, and then tags on 'patients with a history of trauma, abuse or adverse childhood events [ACEs]...

In order to Comment under Times articles it is necessary to have a paid subscription and use the Commenter name the payment is under. Though The Times offers subscription deals which can be repeated (deals such as subscription for £1 a month for 4 months). So Commenters must be paying...

The ME gaslighting, sexist, denigratory, and at times downright malicious, ME disease-denier brigade is energetically out in the Times comments today. Always the same fatuous, or frankly false, arguments. The same names in the Comments to Every ME Article in The Times, year after year...

@Maat Todays Times article - 'As my daughter died of ME, the state met in secret to blame me' Accessible archive Link https://archive.ph/liHFG The long Times article of 19/7/2025 'We demanded help for our sick children. We were accused of abuse Some of society’s most vulnerable are being...

From the first of a series of open letters from the Countess of Mar to Simon Wessely, with his replies. December 2012: Lady Mar to SW: ".. So much of the friction comes from people not knowing what you think because you are so inconsistent. For example, in your presentation to the full Board...

Is anyone here a verified Twitter/X user? If so could you post a copy of the Community Note that's been attached to that twitter/X thread please? .

Megan Arroll, chartered psychologist and NLP enthusiast, used to be 'Research Director' at Alex Howard's Optimum Health Clinic (which, yes, claimed, in Alex Howard's hyperbolic style, to have a 'Research Department'): 'A preliminary prospective study of nutritional, psychological and...

In The Times last week: 'We demanded help for our sick children. We were accused of abuse Some of society’s most vulnerable are being torn from their families by officials who claim their parents are fabricating illness' Accessible Archive version...

The Sussex Group has form. In 2004/5 The Sussex Chair organised and hosted a public meeting for Peter D White (PACE) and Dr Maurice Murphy (Bart's 'CFS' Service) to promote the (yet to be established) 'CFS' Services/CBT-GET clinics. To get 'the patients' on board. Using Sussex patients to...

'We have written to the APPG on Disability rather than the APPG on M.E. because in recent months we have had private conversations with individual people living with M.E., carers, and advocates. They have each raised concerns with us about the closeness of a national charity to BACME (BACME...

Sally Callow (Stripy Lightbulb) has obtained by a series of FOIs the DWP Work Capability Assessment Assessor Training Document for ME/CFS, which was co-created by BACME, which contradicts NICE, which has been used for training DWP assessors since 2023. The training document appears to be a...

Sally Callow (Stripy Lightbulb) has obtained by a series of FOI the DWP Work Capability Assessment Assessor Training Document for ME/CFS, which was co-created by BACME, which contradicts NICE, which has been used for training DWP assessors since 2023. The training document appears to be a...

Carson blocked me on X too. Looks like he doesn't like being disagreed with and he's not bothered that his blockings disempowers patients, deprives patients of a voice on SM platforms.