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We've got a new tube channel https://www.youtube.com/channel/UCLw_WOa25bySRh5F9ASaSXA and have just posted the first part of a two part podcast on heart rate monitoring We were lucky enough to be joined by Todd Davenport from Workwell and Sue Jackson who you may know writes a lot on her...

Thanks for tagging us. Grrrh is all I can say! Will add it to the agenda for our meeting next week to work out how to respond as although it's not pure physio it does have information about activity management which is concerning

Thanks for sharing - I have been on holiday so only just back on line!

I will check with the others - it's been a hectic couple of weeks at work and I am not totally up on where we are with everything!

Thank you for tagging - As a mum to two boys with ME I cannot like your comment in anyway! Will have a read even though it may incense me!

We're trying hard to get some information included about PVFS/ME - will keep you posted. We did manage to get a mention of PVFS on the CSP website which wasn't initially included - baby steps https://www.csp.org.uk/public-patient/covid-19-road-recovery

Ah yes I think this may have come our way already! Will share with the others - we have a semi standard response now!

@Graham please let me know if you still would like me to put you in touch with the A&E passport work Michelle

We've just done another webinar for physios - this time for physios in neurology. Pretty much every time we are getting really positive feedback so fingers crossed we are slowly getting the message out there. Not sure if you have seen but a group of OTs has set up a similar group "OTs for ME"...

If you ask them to contact us via our email physiotherapyforME@gmail.com we will see what we can do

already on it! ;)

This is such a great thread and thank you @Andy for posting. We will definitely be using this information to help with our podcast With regard to the comment about pacing as treatment, we say the following on our website "Physiotherapy will not "treat" the underlying disease mechanisms...

Sally Singh was one of Nikki's supervisors for her PHD and so we have contacted them to ask more about the service. They also know about pvfs and ME as Nikki has spoken to them about it and they also attended one of our webinars so fingers crossed but rest assured we are on the case and trying...

This is a great question and I'm going to check with the other three. I actually think this is something we need to work into our information for physios. I'll come back to you v soon!

Ooh I could write a thesis on this! My least favourite phrase ever is "no rehab potential" I think (and it is just my personal opinion) that as a profession we are always trying to get the "best possible outcome" when we work with patients, but that certainly isn't always return to normal. You...

I have treated people who have been in intensive care for a prolonged period of time who definitely need specific help and guidance in order to return to normal function and people post Guillain Barre syndrome who are extremely weak but these people usually have specific areas of weakness that...

It's hard to believe that we've only been running for one year, but yesterday saw the anniversary of our first ever meeting as an official group. To celebrate our birthday we thought we'd recap on what we've achieved in the last 12 months See our blog post as there's quite a long list...

It wasn't a deliberate intention to imply that although our preference is towards using ICC over other criteria as it seems to be one of the more robust out there - as ever, happy to learn more about any issues/problems with using it and/or any other alternatives so please do let us know any...

Here's the full thread Thank you @thetimes for putting a spotlight on families suffering unimaginable situations when their children are dealing with ME. We take issue with the spokeswoman for the Royal College of Paediatrics and Child Health The quote “It can be difficult for parents and...

does this help