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It looks like this event has been rescheduled for Tuesday, October 28. Dealing with Grief and Chronic Illness: A Workshop with Marisa Renee Lee

#MEAction announces a creative writing workshop with three sessions: Saturday, November 1, 2025, 11AM - 1PM, EST Saturday, November 8, 2025, 11AM - 1PM, EST Saturday, November 15, 2025, 11AM - 1PM, EST Application deadline is Wednesday, October 22nd, 2025. Apply Today - Writers Guild...

Thanks @MrMagoo - I couldn't remember where to find that thread

From Medpage Today: Medicaid Work Requirements Will Devastate People With Invisible Disabilities — ME/CFS and long COVID patients must qualify as "medically frail"

Thanks for posting! Here's a link with a transcript: https://www.pbs.org/newshour/show/what-to-know-about-rfk-jr-s-efforts-to-address-long-covid-research-and-treatments Spoiler alert, ME/CFS is not mentioned. Also I noticed they posted this important correction (in the video they said the...

News in brief posts for the week of Sep. 29 - Oct 5: Mastodon Bluesky

Upcoming online event: Grief is Love - Book Reading and Q&A Thursday, October 9 3-4 pm ET (Eastern Time Discussion and Q&A with Marisa Renee Lee, author of Grief is Love Register here to receive Zoom link: https://us06web.zoom.us/meeting/register/VGbv5NQESQ-o7bJcDvRlQg

Another article from #MEAction about the latest anthology from the Pillow Writers group: NOW AVAILABLE: Near- Life Experiences: The Pillow Writers Anthology, Issue 2 (some line breaks added) The article (rather long) includes comments from some of the authors. It also includes links to...

I don't have a link for this video clip, but a recording of the Sept. 25 livestream event has been posted by the #NotJustFatigue group. I haven't watched it so I don't know whether this clip was played during that livestream. See this thread for discussion of their livestream event.

A recording of the September 25 livestream by #NotJustFatigue has been posted: https://www.notjustfatiguelivestream.org/ (click on the link and scroll down) I only watched the first couple of minutes, not the whole thing. I presume that some members of US Congress (representatives or...

I found an announcement for this event on the Newfoundland and Labrador Medical Association website: The Long Covid Web group also posted this preview video: Reposting the whova registration link here: https://whova.com/portal/registration/8kCciV-Br9sADUfuMq20/ EDIT: On some pages it...

I thought it would be helpful to post a link to the DePaul University web page with their symptom questionnaires: https://csh.depaul.edu/about/centers-and-institutes/ccr/myalgic-encephalomyelitis-cfs/Pages/measures.aspx

Online Support Group from Bateman Horne Center Topic: Parenting with Chronic Illness Tuesday, October 21, 1:00 pm - 2:00 pm MDT 8 PM in Great Britain & Ireland Advance registration required - Registration link (registration link shows time in your time zone)

Online Support Group from Bateman Horne Center Topic: Navigating the Complex Healthcare Industry Tuesday, October 14, 1:00 pm - 2:00 pm MDT 8 PM in Great Britain & Ireland Advance registration required - Registration link (registration link shows time in your time zone) If you're new to Zoom...

News in brief posts for the week of Sep. 22 - 28: Mastodon Bluesky

From Medpage Today, response to the press conference held by Trump, RFK Jr, etc: The Truth About Tylenol and Autism Video by Mikhail Varshavski, DO, who goes by "Dr. Mike" (includes partial transcript)

Yikes, what a bad headline! This headline from CNN is a little better: Trump links autism to acetaminophen use during pregnancy, despite decades of evidence it’s safe Acetaminophen is the generic name for the drug in the USA, same thing as paracetamol. EDIT: The article has this note about...

News in brief posts for the week of Sep. 15 - 21: Mastodon Bluesky

Free online even from Bateman Horne Center: Coffee with a Clinician: Navigating Clinical Uncertainty Wednesday, October 8, 10 AM Mountain Time Register here (registration link shows time in your time zone)

This reminds me of a small study that compared ORS (oral rehydration solution) with IV saline in patients with a POTS diagnosis. The title of the study says children but if you read the subject recruitment section it says the subjects were "aged 15 to 29 years old." Anyway, the study used lower...