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Continuation of notes from the @s4me_info twitter thread. This post is a copy of notes made during the July 29 session at 1:40 PM and covers presentations by three speakers: Ali Boolani, Liisa Selin, and Deborah Duricka. === start of comments === The next speaker is Ali Boolani (Clarkson...

Continuation of notes from the @s4me_info twitter thread. This post is a copy of notes made during the July 29 session Immunology of long COVID presented by Akiko Iwasaki. === start of comments === Iwasaki started with general info on Long Covid. The percentage of symptomatic patients goes...

Biden–Harris Administration Releases Two New Reports on Long COVID to Support Patients and Further Research https://www.hhs.gov/about/news/2022/08/03/biden-harris-administration-releases-two-new-reports-long-covid-support-patients-further-research.html Link to PDF for Services and Supports...

Blog post from Bateman Horne Center on the same subject as the previous post, OMF and BHC Join Forces to Improve Patient Care.

Continuation of notes from the @s4me_info twitter thread. This post is a copy of notes made during the July 29 session at 11:00 AM, Provocation Studies. === start of comments === The next speaker is Geoffrey Moore (Ithaca College/Cornell University). He talks about prolonged recovery in 80...

Continuation of notes from the @s4me_info twitter thread. This post is a copy of notes made during the July 29 session at 9:40 AM, Clinical Cases Presentation. There were three separate speakers talking about specific cases. === start of comments === The next three presentations focus on...

During the conference volunteers live-tweeted during several of the conference sessions using the forum's twitter account, s4me_info. This post is a copy of notes made during two sessions on July 29 from 9:00 AM - 9:40 AM. First up is Dysbiosis in the gut microbiome accompanies skewed...

Continuation of notes from the @s4me_info twitter thread. This post is a copy of notes made during the July 28 session at 1:30 PM, Immunology 1. There were multiple presenters for this session, see conference schedule for full list. === start of comments === Avik Roy of Simmaron Research is...

Continuation of notes from the @s4me_info twitter thread. This post is a copy of notes made during the July 28 session at 10:30 AM, Provocative Maneuvers: Methods to Induce Symptomatic Features of ME/CFS. There were multiple presenters for this session, see conference schedule for full list...

During the conference volunteers live-tweeted during several of the conference sessions using the forum's twitter account, s4me_info. This post is a copy of notes made during the July 28 keynote session at 9:15 AM, Pathophysiology of exercise intolerance in ME/CFS & long COVID, presented by...

Many years ago, before I had any diagnosis (early 1990s), several doctors did routine checks of heart rate and blood pressure - taken while lying down, then sitting, then standing. My results were always normal. I was declared free of all issues with my blood pressure or heart rate. Then in...

I thought I'd add a quick note on the NASA Lean Test and the need to validate it as a useful tool. Lucinda Bateman from the Bateman Horne Center has a blog post talking about this test, Why the 10-Minute NASA Lean Test? A short excerpt: That said, even though the NASA lean test is more...

EDIT: Corrected an error - added full list of presenters for one of the sessions. More notes from the @s4me_info twitter thread. This post is copied from tweets made during the July 27 session at 11:30 AM, Dysautonomia, presented by Lauren Stiles. At the end there's a brief comment on another...

During the conference volunteers live-tweeted during several of the conference sessions using the forum's twitter account, s4me_info. This post is a copy of notes made during the July 27 session at 9:15 AM, NIH Grant Writing Workshop: For Students, Fellows, Early Stage Investigators and...

For those with the brain power to discuss this new paper (not me, sadly!), Manuel posted a new thread this morning - https://www.s4me.info/threads/epstein-barr-virus-behind-the-development-of-autoimmune-diseases-cancer-me-cfs-and-long-covid.28782/

From an Solve M.E. email, received today: Link to the recording:

From an Solve M.E. email, received today: Link to the recording:

Abstract Postural Orthostatic Tachycardia Syndrome (POTS) is a complex, multisystem disorder characterized by orthostatic intolerance and tachycardia and may be triggered by viral infection. Recent reports indicate 2-14% of COVID-19 survivors develop POTS and 9-61% experience POTS-like...

Freakonomics, MD Episode 45: Could Long Covid Help Treat Other Chronic Illnesses? https://freakonomics.com/podcast/could-long-covid-help-treat-other-chronic-illnesses/ "Chronic fatigue syndrome looks remarkably similar to Long Covid, but has been ignored by the medical community. Could...

New blog post from the Bateman Horne Center, Why the 10-Minute NASA Lean Test? https://batemanhornecenter.org/why-the-10-minute-nasa-lean-test/