Search results

Sorry, I meant CRYING: Possibly the most Cringe-inducing study acRonYm that I've seeN in aGes

Possibly the most cringe-inducing study acronym that I've seen in ages

This.

I’m going to strongly disagree with you here. I understand that for most people on s4me, ME is their sole disability, and of course we want to be cured of it. But the disabled community consists of people with a diverse range of disabilities. I was already disabled before I developed ME, so I...

Another reason people talk about “identifying as disabled” is because with some things, like Autistic people and Deaf people, some of these people consider it to be a disability and some don’t.

French L'encéphalomyélite myalgique/syndrome de fatigue chronique (EM/SFC) Spanish Encefalomielitis miálgica/síndrome de fatiga crónica (EM/SFC) Italian Encefalomielite Mialgica/Sindrome da Fatica Cronica ME/CFS

Thank you all for the kind comments :heart: I hope you enjoyed the name I gave to the third character :emoji_wink: I was sitting there like “oh no I have to decide on another name” then I was like “wait of COURSE [this] is his name”. @JemPD yeah as @Trish said there’s no gore or violence. Mild...

Bump

I’ve written a short story about a person with ME. It’s sci-fi / mild horror. It uses a concept from the Doctor Who universe… I won’t say too much because I don’t want to spoil the reveal, but it’s probably a pretty well-known concept even to non-fans. (Not quite as well known as the Daleks...

Fwiw, I had my (private) appointment with Professor Hanna last week. I was referred to him by a doctor for investigation of particular symptoms which I have (am not going to go into detail of my symptoms here though, as I don't want people who haven't examined me attempting to analyse my...

Oh I actually have an appointment with him next week… (However I am not going to in this thread go into the reasons that I was referred to him.)

Luna isn't (mostly) talking about Facebook groups. She has been diagnosed with mitochondrial disease herself by a legitimate doctor. I imagine she is repeating what he told her. And she's talking about academic studies which she read. She made ONE reference to symptoms that someone described in...

Honestly the first thing a GP will say is to increase your dose of the over the counter antihistamine. The NICE guidelines for hayfever - last time I looked at them, at any rate, which was a couple of years ago - instruct GPs that most OTC antihistamines can be taken at 4 times the recommended...

https://cureme.lshtm.ac.uk/decreased-no-production-in-endothelial-cells-exposed-to-plasma-from-me-cfs-patients/?fbclid=IwAR2RvPRGaRKiMr0c6oSuqenWkDbD2w5RXF75YYKK5uLRblTGD9OAPfo5KLQ

Hiya I’m asking on behalf of a friend who has asked me for resources. He’s worried about *his* friend, who’s been fatigued post-covid for 2 and a half weeks. He is very worried that she is taking things too fast and not letting herself rest. I’m trying to find some information explaining that...

Totally agree with you re: not just referring straight to a dietician for weight gain . GP should be able to test your thyroid hormones themselves - weight gain can be a symptom of hypothyroidism. I'm not sure if there are other hormones affecting weight?

Yeah big problems with this study

Yes, although if newer variants like Omicron have a significant level of vaccine escape, then that protection against long covid may not hold.

I have a horrid suspicion as to who this was...

What