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I meant the prejudices that can be held and encouraged about patients, but see that I wasn't clear on that.

I should have been clearer - I was thinking about this quote, that I've seen people post as if it's so clearly self-damning that no further comment is needed: https://www.s4me.info/attachments/strauss-png.17160/ I'd always thought that I could see why he might question the value of a label...

That's true, and it does cause problems. I think ME has an advantage from having come from within the medical profession rather than from patients, and from having emerged before the mighty wars began. Also, people using it tend to do so with an awareness that it's likely to be a placeholder.

I've always had some sympathy for Strauss's views - especially at the time they were given. When a diagnosis can be given without clear evidence of immune dysfunction a label like 'chronic fatigue immune dysfunction syndrome' can encourage somewhat snide views. I think that's just another...

Supervised by Moss-Morris as a research student. Wonder if she's related to the other Hans Knoop?

Some of the bits from the google translated article I found most of interest: https://www.dagbladet.no/tema/navs-me-hjelp-skaper-debatt/75932875

Thanks for that. If there's a copy you could pm, that would be great.

Has anyone got access to a translated version of this story? Seems you need to log in somehow for it. NAVs ME-hjelp skaper debatt https://www.dagbladet.no/tema/navs-me-hjelp-skaper-debatt/75932875

I was just thinking about attempts to make the late and dramatic changes to the PACE protocol seem as if they were part of the plan, and thought I'd post this: From: PACE trial protocol: Final version 5.0, 01.02.2006 I have this as a searchable pdf. It's a very trivial point compared to the...

The authors are these two: https://blogs.bmj.com/bmj/2020/09/03/we-have-heard-your-message-about-long-covid-and-we-will-act-says-who/ It could also be a genuine question? edit - actually other tweets make his views clearer:

Are they confusing (perhaps deliberately) quality of life with the scores of quality of life questionnaires? Which patients told them that learning to 'to rate his or her own symptoms as less severe or threatening' is of utmost importance to them?

Saw this from Fox on survey results showing that lots of high profile covid researchers reported suffering some harassment: https://www.nature.com/articles/d41586-022-00936-4

I was just reading this 2020 ICO PACE judgement: https://ico.org.uk/media/action-weve-taken/decision-notices/2020/2618033/fs50867390.pdf It seems KCL is using the 'ongoing research' argument to avoid releasing PACE data, and they provide some details of it here: Some of their claims on cost...

The RCPsych's values, in case anyone thinks they're important:

https://www.rcpsych.ac.uk/news-and-features/latest-news/detail/2022/03/29/college-issues-unreserved-apology Thought this was a bit interesting.

Thanks. I hope I wasn't too bad in my post - I can be.

This from McCrone? https://journals.plos.org/plosone/article/comment?id=10.1371/annotation/81bb33be-7b60-45f3-b467-efe29ced1bde

You're right - I think I misread something: https://bjgplife.com/contribute/

It would be interesting to see the peer review for that BJGP piece.

Here's an image file of the whole page too.