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  1. Joh

    The ME Show

    Episode 7 is online! :) http://www.meassociation.org.uk/podcast/
  2. Joh

    Michael Sharpe skewered by @JohntheJack on Twitter

    Someone mentioned 'the banality of evil' and Wessely tagged Mike Godwin (Godwin's law).
  3. Joh

    Michael Sharpe skewered by @JohntheJack on Twitter

    And @TiredSam already found this gem and mentioned it in this thread but it's so good that I wanted to post the original.
  4. Joh

    Great interview: "From Fit Nurse To ME Warrior"

    The website linked to her Instagram account
  5. Joh

    Great interview: "From Fit Nurse To ME Warrior"

    She already was there. She's only diagnosed for a year and went there very early on. She collapsed afterwards and apparently since than is worse than before, needing a wheelchair (says one of the go fund me entries). Her latest treatment was IVIG. The guy running it who did the interview is...
  6. Joh

    Great interview: "From Fit Nurse To ME Warrior"

    Great video interview "From Fit Nurse To ME Warrior With Ashanti Daniel" by Valentine Ewudo: https://thinkalpha.net/fit-nurse-to-me-warrior-ashanti-daniel/
  7. Joh

    Jen Brea $100,000 crowdfund for 2018 #MEAction activities

    I also see it in German. :) Wouldn't mind Andy visiting the Robert Koch Institute, DEGAM and AWMF to explain ME. ETA: "So who of you wrote the guideline tiredness?"
  8. Joh

    Michael Sharpe skewered by @JohntheJack on Twitter

    This is from a book by Wessely (Chapter: The patient who threatens violence):
  9. Joh

    Children’s views on research without prior consent in emergency situations: a UK qualitative study, 2018, Woolfall et al (including Crawley)

    Just found out that I'm blocked by CCAH Bristol! The first time ever someone blocked me. Can't even remember having commented on their site, apparently it's enough to be critical of Crawley's science.
  10. Joh

    Michael Sharpe skewered by @JohntheJack on Twitter

    I would recommend to read the whole Twitter thread and completely agree with @Lucibee. This is so sad. (ETA: Twitter)
  11. Joh

    German ME/CFS Association monthly updates

    Yes, I also saw the Google translation and had to chuckle. But I can assure you that the German version is correct. :) BTW I listened twice to your interview because I liked it so much and told my mother today about something you said because it resonated so much with me (about having colleagues...
  12. Joh

    Caregivers' guide by #MEAction

    Haven't manage to read it yet. I agree and think that's mostly the reality worldwide, I don't even manage to get symptomatic treatment for basics like sleep or pain. It is encouraged to leave comments in the document directly (I think it only works if you access it through the #MEAction...
  13. Joh

    German ME/CFS Association monthly updates

    Forgot to mention: @Emsho and @B_V you're also included in the monthly German news update on ME linked to in the post above.
  14. Joh

    Caregivers' guide by #MEAction

    New(ish) caregivers' guide by #MEAction Caregivers' guide: Brochure: http://www.meaction.net/wp-content/uploads/2018/05/MEAction-Caregivers-Brochure.pdf
  15. Joh

    German ME/CFS Association monthly updates

    The monthly News-Update is online. Original German version: https://www.mecfs.de/me-cfs-news-update-06-2018/ English Google translate version: https://translate.google.com/translate?sl=de&tl=en&js=y&prev=_t&hl=de&ie=UTF-8&u=https://www.mecfs.de/me-cfs-news-update-06-2018/&edit-text= @Gary...
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