She already was there. She's only diagnosed for a year and went there very early on. She collapsed afterwards and apparently since than is worse than before, needing a wheelchair (says one of the go fund me entries).
Her latest treatment was IVIG.
The guy running it who did the interview is...
Great video interview "From Fit Nurse To ME Warrior With Ashanti Daniel" by Valentine Ewudo:
https://thinkalpha.net/fit-nurse-to-me-warrior-ashanti-daniel/
I also see it in German. :)
Wouldn't mind Andy visiting the Robert Koch Institute, DEGAM and AWMF to explain ME.
ETA: "So who of you wrote the guideline tiredness?"
Just found out that I'm blocked by CCAH Bristol! The first time ever someone blocked me. Can't even remember having commented on their site, apparently it's enough to be critical of Crawley's science.
Yes, I also saw the Google translation and had to chuckle. But I can assure you that the German version is correct. :)
BTW I listened twice to your interview because I liked it so much and told my mother today about something you said because it resonated so much with me (about having colleagues...
Haven't manage to read it yet.
I agree and think that's mostly the reality worldwide, I don't even manage to get symptomatic treatment for basics like sleep or pain.
It is encouraged to leave comments in the document directly (I think it only works if you access it through the #MEAction...
The monthly News-Update is online.
Original German version: https://www.mecfs.de/me-cfs-news-update-06-2018/
English Google translate version: https://translate.google.com/translate?sl=de&tl=en&js=y&prev=_t&hl=de&ie=UTF-8&u=https://www.mecfs.de/me-cfs-news-update-06-2018/&edit-text=
@Gary...
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