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Petition can still be signed: Right now 7,989 of 8,000 signatures

E-Mail from #MEAction:

7529 signatures so far. Today is the deadline (I think). https://my.meaction.net/petitions/demand-expert-input-community-consultation-on-new-me-guidelines-from-cdc?bucket=&source=twitter-share-button

Fixed the links in the text of my first post. This is the link to "attempting to quietly hire": https://www.fbo.gov/index?s=opportunity&mode=form&id=7017b225c1d117912f3cdeef88cb82fa&tab=core&_cview=0

#MEAction: Full text: https://www.meaction.net/2018/08/26/stop-cdc-from-hiring-shoddy-contractor-for-me-treatment-guidelines/?mc_cid=20165100b3&mc_eid=926b73a95d Link to petition: https://my.meaction.net/petitions/demand-expert-input-community-consultation-on-new-me-guidelines-from-cdc

Sounds great! I started a thread in our German section, where we could maybe work on this little project. :) Thanks for the reminder @Sly Saint, I wasn't aware that signatures can still be collected.

Yes! So far government funding in Germany for ME has been zero Euro, but unfortunately it doesn't look like it's going to change anytime soon. The study mentions that it was funded by a grant from the Ministry of Science and Technology Taiwan (and donations from a German charity). Time to step...

Yes, it's disappointing, again not a single doctor or other person from Germany (apart from the charities). My impression is that the team at the Charité is under pressure and maybe isn't in the position to openly engage in "activism". Maybe we could ask the two or three private doctors who...

A German girl with very severe ME was held hostage at the neuro-pediatric station at a university hospital in Germany for 2 years. The mother had her parental rights removed because she objected to the "activation regime" and was only allowed to see her daughter for 15 minutes per day...

The original note from the series that looked for participants was shared on Twitter: :

(The first post is about Prof. Montoya)

:)

Also possible to rate on IMDb: https://www.imdb.com/title/tt8792570/

Agenda: Safeguarding children with CFS, Pervasive refusal syndrome, Gathering evidence – the police experience

Jamison posted the timecodes he's in, if people would like to just watch these parts:

Haven't watched it (no Netflix and trial month already used). Read that Jamison's sister was filmed by the Netflix team when she went to the Stanford Symposium on ME last year – was it included or any other ME specialist (Jarred Younger)?

Sounds like she was involved in making the contacts beforehand (Jamison mentioned a friend in the community who recommended his blog to the producers in the #MEAction interview)