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Also, some regional Kaiser Permanente websites still have very old Healthwise content that, of course, still mentions CBT/GET. Eventually these regional website will get updated with the currrent Healthwise content, but I have no time estimate on this. The issue is these regional websites are...

Even local website search engines get updated periodically. So might just fix itself on the next search index. Assuming the pages were actually deleted. I've asked Healthwise to respond to the search engine GET/CBT results as well as the remaining page which didn't get deleted.

Good news and bad news. The good news: The orphaned Kaiser GET and CBT pages are gone and the links simply redirect to the top level ME/CFS page. That's really good news. The bad news: GET and CBT still show up on searches with a short description, though when you click the links, those pages...

After diagnosis, the patient needs to be taught activity management/pacing. Without pacing, symptoms will remain uncontrolled regardless of the treatment or specialist. Doctors need to understand the importance of pacing, and provide patient education and support. I wish there were an option...

They say there's no compensation for participation, but they forgot about the payback. :laugh: Hopefully, the NIH learns PEM can last for days, weeks, or months. It doesn't resolve as quickly as many doctors think (or the CDC indicates).

I pinged Healthwise, and the "product release" update is scheduled for tonight (Jan 8). The pages have been hard coded into the update to ensure they get removed. So everything looks on track. Still no word about the 3rd link, however. But it's not as important as it's much less visible in...

Essentially, the approach that Kaiser Permanente is taking is to map IOM/SEID criteria to ME G93.3. Though nothing should prevent a doctor from using ICC if they prefer. It seems a reasonable way to proceed at this time. Certainly better than the current practice of mapping everyone to CFS R53.82.

Some cost quotes from the study, suggesting that healthcare providers can actually reduce costs by training doctors and providing more effective care.

Just recently, Kaiser Permanente decided to start using ME G93.3 and slowly move away from CFS R53.82. Eventually CFS will should be abandoned by Kaiser. This paper supports that decision.

The orphaned GET/CBT pages mistakenly left on the Kaiser Permanente website are scheduled to be deleted tomorrow (Tuesday, Jan 8). That's according to Healthwise, as Kaiser Permanente won't say anything for 30 days. As noted in previous post, the URLs are...

Study: Recirculating Intestinal IgA-Producing Cells Regulate Neuroinflammation via IL-10 https://doi.org/10.1016/j.cell.2018.11.035 Press Release: Gut Immune Cells Cut Inflammation in Multiple Sclerosis https://www.ucsf.edu/news/2018/12/412941/gut-immune-cells-cut-inflammation-multiple-sclerosis

I was likely in that study.. I certainly gave a lot of blood around that time. I don't recall being asked how long I had been ill. Edit: I might have been asked prior to the study, but I don't recall being asked at time of blood draw.

Wish the NIH hadn't removed comments from Collins' ME/CFS "Director's Blog" post from a couple years ago. As I recall, several patients told Collins that talk was cheap even back then. The blog was apparently updated last year and all the comments deleted...

We hear from NPR this morning that gratitude is "one of the practices that really wins out from the field of positive psychology". NPR Morning Edition: "If You Feel Thankful, Write It Down. It's Good For Your Health"...

This is what UpToDate was saying before Nov 2018. That although aerobic exercise could be harmful for some, ME/CFS patients may be able to do graded exercise so long as they keep their heartrate low under the supervision of a physical therapist.

Kaiser Permanente says those practicing gratitude have better immune systems. I wish I were joking.

I don't like how Bateman combines ME/CFS and Fibromyalgia. These conditions should be talked about in separate videos. This is the primary reason I haven't recommended this video series to others.

Possibly this? The Evengård et al study says 80%. https://www.ncbi.nlm.nih.gov/pubmed/12839515

You are correct. But my hope is that is changing in the US. Paradigm shifts in medicine take time.

Possible Biomarker for Multiple Sclerosis Identified https://neurosciencenews.com/multiple-sclerosis-biomarker-10380/