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I was involved. I thought that the questionnaire was completely inappropriate. If I had known that questions about shopping carrier bags would be involved I wouldn't have taken part. I think in modern parlance, 'mugged off' would sum up my feelings. The questionnaire was completed on an app...

I was part of this study. In a 'parallel' group. This week I received the app. 25% join the dots tests, 75% questions on your health and how you perceive it. I think it's outrageous. Black and white, all the old questions, catch alls, leading questions, even asking about shopping bags...

Hancock was from around Cambs, he wasn't very supportive.

I saw a letter to a constituent last night, a reply to being asked to support the Savid over his ME plans. The new secretary backed the initiative by SJ 100%. It actually went into a bit of detail and he stated his reasons as to why a better way forward is needed. I've looked for it this...

There has to be no excuse given it's remit. Commercial newspapers have pressures of space, understaffed etc. The BBC can have no excuse for not following up, at least on the Health Section, and in my opinion, published on the main UK page. There must have been a conscious decision by an...

It's of much greater concern that there is nothing on BBC news website regarding the HS statement nor anything on Rethinking ME. I may be wrong but if that's the case it is outrageous. What areBBC health news desk thinking? They must have received a press statement especially the launch of...

I've had an interesting experience. I went on holiday with a mobility scooter. The first week, with no responsibilities or energy spent I was feeling relativity well, clear headed. I left the resort once to go to Dubai Mall for 4 hours on a scooter. I forgot there would be thousands of...

It's not for me. I switch off when I see a Think Bubble. See here https://find-and-update.company-information.service.gov.uk/company/SC105105/officers I see Dr G Purdie is listed as a director. They might have had an event at Dumfries House recently but I could be wrong.

Not long after diagnosis I bought a robot. I have since replaced it with one that has a mop function. It is the best thing that I've ever bought. Massive improvement on the first. The kid does the stairs with a small handheld. Without trying to be smart I don't know why anyone would have a...

I've tried this and found no benefit to me. I did however, hook the TENS on my left thigh and used it over a period of about 3 weeks. I found a reduction of 'lactic' in that thigh when climbing stairs etc. I discontinued but this continued over a good many weeks.

This is my story. Yet when I used the word hangover recently with a consultant in rehabilitation, she only raised one eyebrow.

This is appalling. So ambiguous almost every question requires context. I saw a film once, years ago. The main character is on the run from an organisation not unlike the masons. Every person he felt he could trust happened to be members of the organisation. Always on the run, being told...

Long Covid Scotland I have first hand information that a person recovering from Covid and with difficulties recovering was admitted for tests on a particular problem. The test failed to find any physical problem. The OT department discussed the case and decided that she was suffering from a...

If you search Visible tracks your post-viral illness 2nd top is North Bristol NHS Trust https://www.nbt.nhs.uk/our-services/a-z-services/bristol-chronic-fatigue-syndromeme-service/post-viral-fatigue-a-guide-management Google does work in mysterious ways.

Can I relate my experience of visiting a Rehabilitation Consultant on Friday morning. I was referred by my GP, who said they had an interest in ME CFS. Asked to suggest 'easy wins' to improve my condition I suggested - sleep and diet. In the presence of my wife and two students, she suggested...

How and why did the Linbury Trust get involved? Waiting for their tweet promoting the study. Wouldn't be a core aim of the Trust to help snake oil vendors with money, earn more money. Hard to believe they didn't do due diligence, hard to believe they awarded a grant.

This is the most useful app. https://www.hrv4training.com/faq.html The designer. https://www.marcoaltini.com Quiet an interesting guy. PhD cum laude in Data Science MSc cum laude in Computer Science Engineering MSc cum laude in Human Movement Sciences, High-Performance Coaching It's...

It's been the most useful piece of kit I've come across. I see definite trends from the readings. The apps I've tried are all geared towards sports activity. Unfortunately, I'm not well enough to be disciplined or clever enough to use the strap to it's full potential. With regard to...

No I don't. It appeared on their internal notices yesterday. Sent to all D & G healthcare professionals. As a matter of interest. GP's get these notices. They will scroll through. Would they open and go through modules like these as a matter of course. Or would they pick and mix by...

Dr. Nina Muirhead's educational modules went live on the NHS D & G system yesterday.