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I often find it hard to distinguish between PEM and an incipient virus. All I can do is rest and see what transpires. Obviously with children you won’t always have the option to rest when you need to, and we can’t rule something else is happening. Also I wonder, given your body is adjusting to...

I was wondering that, as a male with a sudden onset in my mid thirties associated with an acute EBV infection I had no obvious reasons to suspect any hormonal issues at that point in my life. Also anecdotally the men I know about with adult onset also had their onset in their thirties. I wonder...

Shouldn’t the title read ‘Patients with Long Covid seek relief with alternative therapies’?

Fingers crossed for a repeat of previous appeals’ last minute surge. We need one of the BPS grandees to attack David this evening to give a bit of extra momentum, unfortunately they seem to have learnt from experience on this. What a shame they fail to learn from experience how to do good research.

My letter says £100, but gave no indication as to how it is calculated. Presumably having both the state pension and a work pension reduces the ammount.

If reasonably predictable even a short term effect may have a very real practical value. I have just had one of my godchildren visiting for a week. He really understands my limitations and did all the cooking while he was here, but I am still needing time to recover and would have loved to do...

My concern is that the Government doing anything in terms of service provision in the short term would just do more of the same. Until current service providers admit their current practice does little good and potentially harms, and until we have decent research funding I suspect any increase...

The delayed aspects of PEM make it harder to spot any patterns beyond regular crashing, but also for me it further was confused by the additional issues of gluten intolerance and OI. In particular my gluten intolerance operates on a similar 24 hour delay and overlaps symptom-wise with PEM. Back...

Though I recognise some of what is said in the paper from the years I spent fighting to continue working, in some ways I had an accommodating line management, that allowed me to go half time at work. I was lucky I could at the time absorb the financial cost this involved and my work schedule of...

I was the same, it was not until I was some ten years in, and five years after having had to give up work, that the variation in my ME began to make any sense at all; only once I had come across the concept of PEM, had identified my gluten intolerance and became aware of OI that I had any chance...

My memory is unreliable, but I am sure there have been attempts to create such questionnaires or brief assessment tools devised to help doctors work towards making a diagnosis in other conditions. I think I recollect similar tools for dementia and for distinguishing dementia from dysphasia. It...

My feeling is that it would be useful to have a PEM questionnaire, but we should stress that of themselves each is not diagnostic of PEM as seen in ME/CFS, as any firm conclusion requires an appropriate professional making a judgement on the overall pattern of symptom change following exertion...

I do wonder That is interesting, because the PACE type CBT advocated for by such as Wessely and Chalder seems totally at odds with the principles of CBT as I was taught them as a psychology undergraduate in the UK in the 1970s. The whole point of CBT was that it was to give individuals tools...

Note - this is our general thread on the enzyme CoQ10, though there are also a number of other threads on studies looking at [this supplement]. [edited to add missing final noun phrase]

HPDL, an acronym where remembering what the actual initials stands for is probably not necessary: 4-hydroxyphenylpyruvate dioxygenase-like

Unfortunately we lack robust data and often reading what is written on this topic it seems to me there is lack of clarity in relation to how the terms sensitivity, intolerance and allergy are used. Though they are not unproblematic there are studies suggesting that food intolerances occur in...

And changes depending on who is being talked to.

@Rick Sanchez, a very interesting post, thank you for sharing.

Sorry I struggle with acronyms, so for anyone else with the same problem WGS = whole genome sequencing

Unfortunately I am also thirty miles from the nearest Tesco. NB I didn’t find their charges on their website, but Google AI thinks they charge between £75 and £100 for a Covid jab. Their flu shots are cheaper.