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Same here. As I remember it quite a few of us who did it privately had that experience, but were later disappointed to find it didn't last or wasn't real. My improvement at the 2 month mark also coincided with what I now know to be my annual, partial remission that comes every spring. I have...

I have a Polar A370 that I’m very happy with, though I believe the Garmin equivalents have an easier alarm setup. On the Polar I have to set up an exercise program for the relevant pulse zones every time I want to use the alarm function (to avoid going above a certain HR). It’s not hard and not...

I believe @Mattie mentioned no longer being able to turn his head normally, having to turn his body instead. Yup. I’m so glad Jen brought up conflicting feelings because my instinctive reaction to this story, after being surprised and happy that even one PwME has seen some well deserved...

The prices depend on when and where you did the course. In Norway it’s more expensive, naturally. In the first few years here when it was only LL who offered it I believe she charged £3000, but now that there are more coaches (and because people realized they could take an 1,5 hr flight to...

Some pics from MM Oslo: Very well attended, list of speakers had to to be limited as so many wanted to contribute. Anette Gilje played and sang both before and during.

Here:) ETA: Well done!!!

I’ve fantasized about that sometimes during my worst crashes. Resting completely without the horror of PEM or the alternative, being bored even more out of my mind than I already am. It’s probably not without drawbacks, though. Aggressive rest is something that could be tested, probably. Pacing...

He says in the video checking other relevant diseases is the next step.

Yup, only took 2 days:) :thumbup: don’t know if there will be another, if so they’re leaving it very late.

No, we have «Good Girl Syndrome», which I guess is “toxic femininity”. We did a very human thing when we tried to push through before we knew what we were doing to ourselves. I get that people want to find explanations for what happened to them, but it seems unhelpful and unnecessary to label...

$78,241 now, 82%, so someone must have added another big donation (the $5000 one has not been added yet). Effectively we’re at around 87% including the matching :)

That is exactly what it feels like. No idea if it’s correct or not, but that’s the way I would describe it. Try taking it in the morning/afternoon? I can’t take it less than 2 hours before bedtime or I can’t sleep at all.

Happy to help, just wondering if it might be easier to stream on FB? No lower limit there, AFAIK. ETA: And more easily accessible, easier to share etc.

Agree with this, I have experienced those twice and I was vomiting from the pain both times. Was it even on the list? A list makes no sense in the first place, as mentioned above nearly everything can come in mild or severe forms.

Oooo, if ME/CFS research could latch onto cancer research we'd be set :jimlad:

As I'm sure you could all guess, the above sentence was badly translated by Google and should read something like this: The deficiencies in the psychological treatment studies at ME / CFS have been reported to Mats Reimer on many occasions , but he deflects critical questions and continues to...

It was in connection to this specific graph. He also said they have started running more samples through and so far every single one has had the same response if I remember correctly. But then they have used very, very strict entry criteria (only people diagnosed by very experienced...

Yes, I can ask the journalist for it if it’s needed. I think she’s planning on a feature article when the time is ‘right’. For now though I think we’re better served by letting it play out for a while... NA has a new job as an advisor to a local DWP branch in Oslo and we’ve had some reports on...

Yes, by accident! Some sort of web service that archives presentations saved it, where a Norwegian journalist (who has actually realized that the ME-patients are right) discovered it by chance. She downloaded it, and a few patients too once she tweeted about it I think, before they realized...

No, because there has never been any:rolleyes: It’s the usual BS.