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I just tried the google search console and it will need to be done by someone like Jen or another MEpedia administrator as far as I can see. I guess doing the same pages I did on the Wayback Machine (see above) would be a good idea. FYI @JenB @JaimeS I also did the Trial By Error, Open...

Main Page, Pace trial, ICC, CCC, and IOM report, Fibromyalgia, ME, CFS, SEID, CF, and all the Primers have been saved to the Wayback Machine as well a few other pages such as Neuroinflammation and Brain scans. EDIT:If this is not the same as the Archive.org page, (although Wayback is found at...

I will do some pages. Never worked with it. What do I do? EDIT: I just figured it out. Saved main page and a few other pages.

Overtraining Syndrome on MEpedia

I agree. The SEID criteria words it a bit differently. A substantial reduction or impairment in the ability to engage in pre-illness levels of occupational, educational, social, or personal activities, that persists for more than 6 months and is accompanied by fatigue, which is often...

Lately I sometimes have, upon awakening, a spinal cord I feel a shiver through and it is warm. The shivering lasts a few seconds while the warmth a minute, maybe two. The only time I had this was coming off Cymbalta many years ago. It happened during the day. But, it was hot and caused a lot of...

Merged thread B12/Folic Acid and D3/K2 Supplementation My B12 and D are low, like many people with or without ME/CFS. I was able to raise them both to normal levels with supplementation. I went to Vitacost.com and found BTotal, a liquid sublingual. This has all the B's (except B1 which I take...

CCC criteria is a problem with the pain requirement. I think they made an error making it mandatory because clearly many patients do not have pain or pain all the time. I also find it problematic because they have fatigue OR PEM. Now, in the early ME criteria by Ramsay? he did not have PEM (that...

The problem with Fukuda is who is using it and for what end. CCC will diagnose moderate and severe ME/CFS and SEID you will capture mild and moderate ME/CFS, and ICC you will diagnose severe ME. Fukuda in the wrong hands will give researchers the same conclusion: Subgroups that have this or...

I wonder which criterion they are using. If it is Fukuda, forget it. And, since it says CFS, I bet it is.

Firefighters Worried Dirty Gear May Be Causing Cancer - Video - NBC10 Philadelphia (2018)

I should have rested a full six months, maybe more, but only rested about 2-3 months and then went back to school part time without gym class. But, I might have made a full recovery if given more time to rest.

I don't think most patients believe ICC-ME is the one true definition. That criterion defines a very severe cohort. CCC will capture the less severe, IMO. My symptoms do not meet the ICC criterion and I am disabled and mostly housebound; I do meet CCC. I think most fit SEID and then CCC; it was...

Lots of researchers want to work on this, just not those who are AT the NIH. The NIH need to distribute money to Younger, Davis, Montoya, Klimas, Hanson, VanElzakker, and others that have been working on ME/CFS for years.

@JaimeS I think this came up before somewhere and you responded to it. There is more to PEM than heart rate monitoring during exercise. I don't believe in the heart rate monitoring for ME/CFS as there are abnormal biological changes taking place which have already been proven out in research...

This is exactly what happened to me.

I believe major depressive disorder and chronic depression are neurological and really don't fall into the type of depression experienced after life events such as going through a divorce or death of a child. Nor should they be lumped in with emotional issues such as being brought up by...

I scanned it as I my cognition is foggy today but, I didn't see it as a problem article. It just seems to be an article on learning how to understand the patient's experience as a journalist, not for or against the Lyme Disease diagnosis.

IMO, ME-ICC defines the most severely ill. CCC will capture original ME or people less impacted that would be diagnosed under Fukuda CFS criteria. I think SEID, CCC, and ICC are all valid but are just capturing different severity or types of the same illness.

I read the comments on a news article on this research and realized there was something wrong but could not figure out what it was. As usual, Dr. Mark Guthridge, in a mere tweet, explained the problem.