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  1. Unable

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    I didn’t suggest anything of the kind. Someone asked who wrote the piece, as they didn’t want to click the link. I answered.
  2. Unable

    Thoughts on AMPS—psychosomatizing?

    Is this a means of reducing complaints about pain? Fewer will go to their Drs looking for pain relief, if they fear an AMPS diagnosis and treatment like that!
  3. Unable

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    I think an outsider reading that piece might wonder if the “activists” have a point! The article may be slanted from the other direction, but it gives enough detail of concerns about the science, for the establishment of reasonable doubt on the therapies of CBT/GET. Not all bad at all.
  4. Unable

    Assessment of Post-Exertional Malaise (PEM) in Patients with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). Holtzman et al. (2019)

    I’m sure this could be used to compare the response patterns of various different criteria used during diagnosis. (Eg SEID, CCC, ICC etc etc.). Comparing such responses could be enlightening. It might be also interesting to compare the responses of patients diagnosed by different centres. I...
  5. Unable

    Professor Crawley BPSU study - Chronic fatigue syndrome (CFS) Severe children Feb 2019 - 2020

    It’s a form of sampling. A snapshot used to extrapolate to a larger situation. It might go something like this: If you know how many patients were seen in total in that month, and you know what proportion of each surgery’s full complement of patients those patients make up, then if you also...
  6. Unable

    Letter from the 25% ME group to NICE re: CBT and GET, Feb 2019

    The argument about safe delivery seems a non-starter to me. If there are problems standardising the delivery of the treatment, then that is a problem with the treatment. I can see no drug being accepted for NHS recommendation that could not meet quality standards. This is no different. The...
  7. Unable

    Ethical classification of ME/CFS in the United Kingdom (2019) Diane O'Leary

    Here’s a thought. Although mental illnesses are diagnosed by descriptors and the assertions of psychiatric assessments, many medical issues have clear biomakers. Now I’m thinking that IF there was no confusion between “mental” and “medical” patients, then testing a sample of patients under...
  8. Unable

    Does Positive Thinking in Pregnancy Boost Children's Maths Skills?

    Mothers get the blame again! Way to make expectant mums paranoid! “But you MUST think positively, my dear or the baby will never be able to do his sums.” As the rent man bangs on the door, the credit card bill comes in, and she throws up again due to morning sickness. Yeah, that research is...
  9. Unable

    'Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much' PLOS Blog post by Hilda Bastian

    Yet if the problem is inappropriate “conditioning” of the patient’s behaviour to certain adverse stimuli, then surely “deconditioning” (or reconditioning) should be the aim of the treatment? In other words if inappropriate conditioning is the problem then deconditioning would be the desired...
  10. Unable

    Pacing - definitions and sources of information

    Quick thoughts on Pacing. It strikes me that the phrase “Pace yourself” is very useful. I have a friend who does 24 hour running races!! In her case “pacing” is about keeping below a speed that would cause her muscles to accumulate acids. She bases this on various things like running speed...
  11. Unable

    EAT-Lancet study under scrutiny

    Interesting spotlight on Lancet procedures in another area:
  12. Unable

    boy diagnosed with autism when he just needed antibiotics

    I think @Jonathan Edwards your clinical understanding of “psychiatric” (presumably as something that is affecting behaviours, and mood etc. as opposed to affecting a physical function) is different from the lay interpretation of “psychiatric” (that the person failing in some way - ie is weak...
  13. Unable

    Sugar or Fat?—Metabolic Requirements for Immunity to Viral Infections, 2017, Shehata et al

    This looks very interesting, but will require a much clearer head & a little more time, to absorb than I have right now..
  14. Unable

    boy diagnosed with autism when he just needed antibiotics

    And of course the remaining patients with “psychiatric problems” could likely be helped if there was a genuine benefits system for those out of work, and fair living wage for those in work. But it’s much easier to just apportion blame. :(
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