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    Combining Topic Modeling, Sentiment Analysis, and Corpus Linguistics to Analyze Unstructured Web-Based Patient Experience Data...Modafinil, 2024,Walsh

    Yes. "Existing randomized controlled trials and systematic reviews, which conclude insufficient or low-quality evidence of effectiveness". Last sentence of "Results" in the abstract. This research: someone on facebook, x and tiktok says it helps.
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    Cognitive assessment in ME/CFS: a cognitive substudy of the multi-site clinical assessment of ME/CFS (MCAM), 2024, Lange, Unger +

    Prior to my appointment with researchers in The Netherlands I was asked to do a N 2(pictures) back N 3 back test over a 3 week period, on-line, at home, on good moments and bad moments. Reaction time and memory accuracy were tested. The differences in good or bad moments were pretty obvious. In...
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    Review Interventions for the management of long covid post-covid condition: living systematic review, 2024, Zeraatkar, Flottorp, Garner, Busse+

    Thanks Nightsong for posting and @dave30th for the excellant blog. BMJ must really like your writings they keep coming back for seconds, thirds......... Are they incapable of learning? Or don't they care? Bad press is attention too?
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    ME/CFS and LC at International Society for Magnetic Resonance in Medicine 2024

    What would your own n=1 answer be to your question?
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    ME/CFS and LC at International Society for Magnetic Resonance in Medicine 2024

    Could you explain what you mean by more established longer duration non-LC-ME/CFS?
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    ME/CFS and LC at International Society for Magnetic Resonance in Medicine 2024

    Thanks for the warning. Venous oxygenation caught my attention. I'd love to learn more about that. I do remember though a bold signal turning into effort preference (NIH).
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    ME/CFS and LC at International Society for Magnetic Resonance in Medicine 2024

    Who's in a hurry? I've only been waiting for 33 years as are miilions of other patients all over the world. Two years embargo, that hurts.
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    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Thanks again. You are a whole lot more persistent than the 70 + NINDS group. Outperforming the researchers!! And I like you're way of thinking here a lot! :thumbup::hug:
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    New Data: The Most Promising Treatments for Long COVID

    No need for logon and I agree with you comment, thanks for posting anyway.
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    Have you limited your activity more than you needed to?

    The opposite for me. I'm doing better in winter. I even put my room temperature on 16 C, helps my brainfog. To keep the rest of my body warm I use warm clothes, several layers if needed. No way I would wait to try things to see if I had improved, impatience grows after 33 years.
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    Chronic Fatigue Syndrome: Challenges for Evaluation, 2024, Gerhartz

    "änd the mental deficits of CFS are potentially compromised by lack of objectivity of patients'complaints" "However, some CFS patients present with pre-procedure tachycardia that questions the result of this test" (treadmill) When someone writes a paper should he not study the subject first...
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    Immune stimulation by vaccination e.g. Staphylococcus Toxoid Vaccine, BCG

    Really great find @forestglip and great follow up @mango, many thanks. I watched the first video. Prof. Gottfries started in 1957, the year I was born. A 50% of reduction of symptons because of this vaccine, injected once a month, could have been available when I got ME/CFS in 1991. The...
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    Red Blood Cell Morphology Is Associated with Altered Hemorheological Properties and Fatigue in Patients with Long COVID, 2024, Grau

    RBC's are less deformable aggregates are formed oxygen binding to hemoglobin is problematic oxygen extraction is problematic viscosity is higher turnover rate of RBC's is higher, more immature RBC's, lower blood volume blood flow is hampered CO2 retention Krebs cycle needs oxygen and it ain't...
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    Differentiation of Prior SARS-CoV-2 Infection and [PASC] by Standard Clinical Laboratory Measurements in the RECOVER Cohort, 2024, Erlandson+

    succinic 63 (3x upper limit). Tested in 1997! Slow as a turtle. It took me 27 years to figure this out. Yesterday I found out high succinic acid could also be caused bij C.difficile. I don't even remember being treated for that, no medication for sure, I certainly was never retested. When...
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    Drawing the lines of fibromyalgia: a mixed-methods approach to mapping body image, body schema, and emotions in patient subtypes, 2024, Swidrak

    I have the same drawing skills you mentioned. The patients only used the body to put their arrows and x's on to point out the most painful spots. I don't think the proposed "treatment" options was what patients expected. Psychologists might want to do some soulsearching. When previous...
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