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I don't know if what you mean by common ground is between your theory and her research but from what i know of her she is a huge asset to ME/CFS

I hope we get faster results as well but real research often takes time and we are decades behind where we should be. Unfortunately we can't say ok we are behind so we will only do quick research because we have no idea if the quick stuff will lead to a treatment or not. It may take long term...

Aye carumba :emoji_face_palm: I'm so sorry to hear about this, its just awful Is she ok?

I'm so sorry to hear this :( That is interesting, was it a mild return or sudden?

Very interesting. How do we make this happen?

Aye carumba

An unfortunate reality :( Pitched? Indeed, and i wonder if @JenB is planning a sequel Indeed, this makes me so angry, funding is so close yet so far. From their reactions you'd think we were asking them to fund the search for martian-unicorn hybrids...

Not only is the placebo effect a thing people can over extend themselves in our disease and pay for it later. Also if our disease is controlled by some mechanism which is likely then pushing on something is likely to cause either a reaction or compensatory mechanism even if its delayed. In the...

Well K1 is found in vegetables, is involved in blood clotting and a few other things K2 is in many forms but two are the most studied MK7 is made from fermented soybeans and is cheap to produce and will perform some of the functions MK4 does. MK4 is found in animals which convert it from K1 that...

Do you take K1 or K2? If K2 MK4 or MK7 or both? I followed K2 research a few years back for likely unrelated reasons, like ME/CFS its vitally important but very understudied.

To a point i agree, my theory was a response to another theory which was not part of the original thread intent or content. This is why i hate accidental unexplained discoveries. When you don't know whats going on the results are unpredictable which drives me bonkers. That said i love...

He may be right, or it may be a symptomatic treatment or it may be a "reset" pill whenever a patient relapses (since most patients were not born with ME/CFS and lived many years before something triggered it). I don't agree with the theory you posted above and in the other thread, i suspect ME...

I'm not a fan of this view. I think its an over simplistic framework that many things could (will) be shoehorned into but is basically a mold that is an abstraction. Not sure if that is making much sense.

I just finished watching it and the narrator makes a good point but more specifically he is saying that a watershed moment opened up money for brain cancer so we need to either create one or convince those holding the purse strings to open them.

Basically, the $5.4 million is an insult. Additionally the NIH is doing us a favour by not stealing even that money like they used to do :emoji_rolling_eyes:

I just got this e-mail from OMF, its a video about 1 hour 2 minutes long

On this we agree. I understand and i would like to give ideas and participate where i can but our army is made of walking wounded and dying soldiers, we have to be very realistic about what we can and can't do. That said we should maximize what we can do which is something i support.

This is well written. What i found for years is that i had a lot of trouble explaining these symptoms, especially in ways that doctors would understand (for the decades before i was properly diagnosed). If i had a do over i would have done things very differently not just with doctors but with...

I loled

You would think. I can explain things i know and give analysis in areas i was involved with before i got this severe, though i have noticed when i talk about ideas here most ideas are shot down. Feel free to check out my started threads on this forum, and also many posts throughout the various...