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Just died for the first time for more then a few secs on my end, the number of viewers crashed and its says Cannot load m3u8 crossdomain access denied

I have had couple freezes today but nt hte downtime others are getting. Not sure why, i am using Chrome on Windows I normally use Firefox but have too many open tabs on it right now

Thanks for your reply, so its not just my ME cognitive impairment blowing my brains out here :D

I have no idea what the current presenter is talking about

Nice, i heard 15 mins then forgot the 1/2 hour part. Indeed. Though the real issue is are the NIH ready to open the purse strings or are they just stringing us along yet again?

I don't agree with some of what he says and some of it is irrelevant. He makes some good points but some have alternate just as plausible explanations. In the end i think his work on metabolomics will be more useful then the philosophical implications of medical research or theories about how...

I'm watching as well, Dr Bateman was good, Dr Naviaux so far is not wrong but is essentially arguing philosophy meets medicine. And he is now confirming that by quoting Greek gods.

+1 Second wind. Good when you get it but you pay for it with a vengeance.

I completely agree. It will be interesting when we figure out what causes ME but until then i will settle for having a treatment.

In the end stress causes everything until its disproven. But it often still sticks around as a secondary cause or trigger because few like completely dismissing their former beliefs.

I think we need to set up some resources to create backup copes of materials The internet archive only does a percentage of mainstream websites and does not do vids at all

Not according to any officially recognized assessment criteria Misdiagnosis does happen but thats a different issue Comorbid conditions are not uncommon and exist for every disease one can have

I would alter this to say have been rejected on irrational grounds repeatedly. Does anyone have a link to the crazy letter that was sent to Ron Davis a couple years back?

+1 I suspect your work is not done here. I do hope they become proactive but its not unlikely they will keep dragging their feet.

There would be no evidence because there is no official medical treatment to give. That said a specialist would be someone who formally diagnosis patients who have been referred like any other serious disease has specialists, would help produce a paper trail for disability (and the patient's...

Is it good?

I wonder if anyone is on the livestream

I signed up again since i received no e-mail, still didn't get one

I don't have that but i have lots of back stiffness and pain which my chiropractor can somewhat control but its driving her nuts (i'm her first ME patient) since i can't do any of the treatments she would recommend from stretching to muscle building to physiotherapy. IIRC my HLA-B27 was positive...