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  1. Midnattsol

    Jejunal feeding: when is it the right thing to do?, Paine et al, 2020

    Very important points. And something I'm happy we focused a lot on in my clinical dietitian courses :)
  2. Midnattsol

    Jejunal feeding: when is it the right thing to do?, Paine et al, 2020

    Ugh. Yes, there are instances where tube feeding might be negative (ex. kids who are exclusively tube fed might not learn/forget how to eat), but if a patient is not eating they need help. And it's not something that can wait indefinitely while the patient "realize they are not getting what they...
  3. Midnattsol

    Estimated incidence of CFS/ME in Norway between 2016-2018, Hilland and Anthun, 2022

    I was diagnosed in 2017, but I was not in contact with specialist healthcare services due to ME then, as already by 2017 was that primary care should do the diagnosis. I don't remember when the rules changed (this is an issue because some pwME will get told by NAV/disability and welfare that...
  4. Midnattsol

    Estimated incidence of CFS/ME in Norway between 2016-2018, Hilland and Anthun, 2022

    Subtitle: "A register study" Abstract (translated by me): Chronic fatigue syndrome/myalgic encephalopathy (ME/CFS) is a complex and chronic illness that is associated with a considerable reduction in quality of life for patients. In this study we estimate the incidence rate of ME/CFS in the...
  5. Midnattsol

    How does pain influence the outcome of CBT in patients with CFS/ME?, Kvam, 2021 (Master thesis)

    The conclusion in the thesis is that change in pain levels is the largest contributing factor to patients reporting improved general health one year after CBT. The association between pain and general health was apparently only visible for those that had "short CBT", which is a flavor of CBT...
  6. Midnattsol

    How does pain influence the outcome of CBT in patients with CFS/ME?, Kvam, 2021 (Master thesis)

    The whole thesis can be found here: https://ntnuopen.ntnu.no/ntnu-xmlui/handle/11250/2776122 English translation of the abstract: Many patients with CFS/ME have trouble with chronic pain. Still Nijs et al (2012) found that clinicians often ignore the patients' pain symptoms, even if pain is one...
  7. Midnattsol

    How does pain influence the outcome of CBT in patients with CFS/ME?, Kvam, 2021 (Master thesis)

    A master thesis on ME from 2021 at NTNU, I think the patients are from Copernio rehab centre: Translation of the text in the image (reformatted by me): The patients are separated into four subgroups, based on a screening of individual needs and goals. These subgroups are as follows: Avoidant...
  8. Midnattsol

    Norway rehabilitation clinics for people with ME/CFS

    Copied post A master thesis on ME from 2021 at NTNU, I think the patients are from Coperio rehab centre: Translation of the text in the image (reformatted by me): The patients are separated into four subgroups, based on a screening of individual needs and goals. These subgroups are as...
  9. Midnattsol

    Norway: Opinion piece on "Facts and myths about ME" by Reme, Flottorp and Wyller

    Posts on Flottorp's appearance on the debate program Dagsnytt 18 has been moved to the thread Lightning Process study in Norway - Given Ethics Approval February 2022 as her appearance on the debate program was due to this study.
  10. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Posts about Flottorp's appearance on Dagsnytt 18 has been moved from the Norway: Opinion piece on "Facts and myths about ME" by Reme, Flottorp and Wyller thread.
  11. Midnattsol

    Autism Spectrum Disorder May Be Highly Prevalent in People with Functional Neurological Disorders 2022 González-Herrero, Edwards et al

    I started a discussion about LP with a GP who said no GP would ever believe in such stories as those from Recovery Norway... so in addition to the reasons already posted I guess many just won't believe it happens and it's easier to blame patients for "misunderstanding".
  12. Midnattsol

    Bright, but allergic and neurotic? A critical investigation of the “overexcitable genius” hypothesis 2022, Fries et al

    No one is disagreeing with that. As I mentioned in an earlier post, in other examples where Mensans have been used as study samples: In annual national meetups where only the most social people would be expected to go, making the problem even worse than it already is. I think someone could make...
  13. Midnattsol

    Bright, but allergic and neurotic? A critical investigation of the “overexcitable genius” hypothesis 2022, Fries et al

    Those people do exist, but most Mensans I know don't talk about their membership and Mensa i just a social club to meet other people with different interests. For me as a kid knowing there were others who struggled at school because teachers would make fun of them/punish them for "knowing too...
  14. Midnattsol

    Elevated ATG13 in serum of pwME stimulates oxidative stress response in microglial cells , 2022, Gottschalk et al

    To me it seems like outliers have been removed in their plot, while you've kept them in yours. If you filter out the top and bottom participants from both groups (and use geom_quasirandom/play around with how wide your groups can be, and change to theme_classic) I think they will look the same...
  15. Midnattsol

    Trial Report Outpatient treatment of Covid-19 and the development of Long Covid..., 2023, Bramante et al

    The short treatment with metformin could also mean that patients have gastrointestinal side effects (that usually pass over time) which could cause them to change their diet short term and would also contribute to changes in the microbiome.
  16. Midnattsol

    Bright, but allergic and neurotic? A critical investigation of the “overexcitable genius” hypothesis 2022, Fries et al

    Yes, I think most/all Mensa groups use figure reasoning tests. Though, it is possible to apply for membership using Wechsler Adult Intelligence Scale or other tests done somewhere else (I think this one also has a figure reasoning test. At least I did one when I had my neurocognitive...
  17. Midnattsol

    Bright, but allergic and neurotic? A critical investigation of the “overexcitable genius” hypothesis 2022, Fries et al

    A study was done on Norwegian Mensa members, and it turned out they were better than non-mensans at recognizing feelings by looking at body postures. I had some fun with a psychology student discussing the framing of that study :rofl...
  18. Midnattsol

    Effects of short-chain fatty acids on intestinal function in an enteroid model of hypoxia 2022 Pearce et al

    Hm, this is somewhat similar to vitamin D. Pre-treating cells with vitamin D before exposing them to something that decrease barrier function makes them better able to resist the damaging effects. (NB, don't think I've seen studies using relevant concentrations of vitamin D and/or barrier...
  19. Midnattsol

    ME/CFS and Post-Exertional Malaise among Patients with Long COVID, 2022, Jason et al

    But type of exercise can matter., at least for me I would regularly burn 2x my basal metabolic rate in a remission I had a few years ago, my fitbit shows months of high, intense activity in that period. That was walking, mountain hiking and biking more or less every day. But if I tried lifting...
  20. Midnattsol

    Self-Reported Long COVID and Its Association with the Presence of SARS-CoV-2 Antibodies in a Danish Cohort up to 12 Months after Infection 2022 Fogh

    And not everyone will mount a strong antibody response at all. So no, a negative antibody test does not necessarily mean there was no infection. Not surprised by who wrote that forskning.no article.
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